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The life course of people with intellectual disabilities and their experiences of the processes of deinstitutionalization : doctoral dissertation = Življenjski potek ljudi z intelektualnimi ovirami in njihove izkušnje s procesi deinstitucionalizacije : doktorska disertacija
Šajfar, Petar
Every person with an intellectual disability has a unique life course influenced by various life events. In exploring life stories, "we can ascertain some of the key structural patterns that have ...shaped (their) experiences" (Henderson & Bigby, 2019:421). In post-socialist countries, the deinstitutionalization processes began to intensify much later compared to some Western countries. In Croatia, the turning point was in 2014, with the commencement of mass relocations of people with intellectual disabilities from long-term institutions to group homes. The aim of this research is to identify the life course perspective of deinstitutionalized people with intellectual disabilities with an emphasis on institutionalization and deinstitutionalization. The research was conducted as a qualitative, ethnographic approach. The data collection methods used facilitated observation and semi-structured interviews. A purposeful sample was used comprising 27 participants, who are users of 11 providers of group home services. Analysis of the data relies on thematic analysis, and the final result is a reflection between the collected data, the context in which it was created and the existing literature (Altheide, 1987; according to Grbich, 2013). A number of ethical aspects have been taken into account. The research results indicate that the life course of people with intellectual disabilities is largely marked by numerous unpleasant events, such as the death of parents and health problems, which also proved to be crucial for their later institutionalization. While participants cited moving to an institution as an important life event, as it greatly changed their lives, once deinstitutionalized, it was no longer an important event because nothing had changed in their lives. Everyday life in group homes differs from that in typical long-term institutions, though clear patterns of institutional culture remain. In terms of the future, most participants expressed modest plans, but the potential threat of reinstitutionalization exists.
Type of material - dissertation
; adult, serious
Publication and manufacture - Ljubljana : [P. Šajfar], 2023
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