People living with chronic pain experience multiple challenges in their daily activities. Chronic pain is complex and often provokes life circumstances that create increased social isolation. Living ...with chronic pain during the pandemic may add additional layers of complexity to their daily lives. The researchers endeavored to explore the experiences of people living with chronic pain during the COVID-19 pandemic. Researchers conducted semi-structured, open-ended interviews about how the pandemic influenced participants’ lives. The interviews were recorded and analyzed using an applied philosophical hermeneutics approach. The findings were feeling socially isolated, losing their sense of livinghood, and experiencing augmented stress levels which, in most cases, aggravated their chronic pain. In addition to gaining an in-depth understanding of the needs of people living with chronic pain, these findings may guide policy decisions with the intention of improving health care access and the overall experiences of people living with chronic conditions during a pandemic.
The purpose of this article is to provide insight into the philosophy and practice of Applied Philosophical Hermeneutics as a unique approach for research in the health sciences. While there are ...other research approaches grounded in hermeneutics, this article focuses on Gadamer’s modern philosophical hermeneutics. During my 18 years as a hermeneutic researcher, graduate students and I have engaged with people with a wide variety of experiences such as preventable medical error, Indigenous health, adult and adolescent chronic pain, social responsibility in higher education, oral health care for autistic children, and the experiences of people living with Thalassemia. Applied Philosophical Hermeneutics offers an approach to help bring researchers, clinicians, and patients together within a community of active partnerships in research. All these projects employed Applied Philosophical Hermeneutics as an approach to gain a deeper and personal understanding of the unique experiences of these diverse groups of people. Hermeneutics remains somewhat confusing as the unmethod which may lead to a dismissive attitude toward this research approach. Therefore, the intention of this paper is to present a risk-free insight into hermeneutics, which hopefully will open-up conversations and new learning experiences among researchers, students, patients, and colleagues.
Celotno besedilo
Dostopno za:
DOBA, IZUM, KILJ, NUK, ODKLJ, PILJ, PNG, SAZU, UILJ, UKNU, UL, UM, UPUK
Women with disabilities are exposed to sexism and ableism, earn less income, and work in exceptionally challenging conditions compared to women without disabilities and men with or without ...disabilities. Adolescent girls living with scoliosis may begin experiencing this compounding bias during their encounters with healthcare from the moment they start noticing differences in their bodies. Being significantly more likely than boys to progress to a curve angle where painful treatment such as bracing or spinal fusion surgery is required, adolescent girls living with scoliosis are therefore more likely to experience chronic pain. The long-term impact of pain and pain-related stigma includes lower educational attainments, decreased vocational functionality, and social impairments in adults after having experienced chronic pain in adolescence.
In this article, the authors will explore the effects and mechanisms of gender-specific peer support in disrupting this trajectory to adverse outcomes. Through individual interviews consisting of open-ended questions, the researchers gathered narrative data from
members, a community-based peer support group for girls and young women living with scoliosis. The data was analyzed using an applied philosophical hermeneutics approach, with intersectionality and testimonial injustice as their framework.
They found that the study participants had their pain narratives reinterpreted by the adults in their lives, including their parents and healthcare practitioners, leading them to question and doubt their own experiences.
These negative outcomes were mitigated through the peer support they received and offered from
. Participants reported having gained confidence and a sense of belonging after they joined this group, allowing them to better cope with their condition more effectively in different facets of their lives.
Introduction : Scoliosis in a condition where a curve develops in the spine. Adolescent girls affected by scoliosis are significantly more likely to require treatment such as bracing or surgery than ...their male counterparts. Curvy Girls is a peer support group for adolescent girls with scoliosis that allows them to engage with each other in a safe environment. Objectives : This study endeavours to explore the experiences of adolescent girls living with scoliosis who are Curvy Girls members and understand how this peer support group has affected their experience. Approach : Sixteen participants were recruited through a senior board member of Curvy Girls. Data was gathered through semi-structured interviews with open-ended questions, transcribed verbatim, and analyzed using an applied philosophical hermeneutic approach, a practice of uncovering insights from transformational conversation. Findings : We found that the participants’ sense of belonging to Curvy Girls did not depend on their level of involvement with the group. Whether they were leaders in their in-person local group, or simply following the organization on social media, seeing themselves represented allowed the participants to feel like they belonged to the group. Future Directions : These findings may help clinicians, healthcare professionals, and peer support organisations deepen their understanding of the perspectives of this specific population. This transformed understanding could lead to the instauration of care and services that are better adapted to this population’s needs, resulting in lessening the burden of the condition on the individual and their support system.
Background
The COVID‐19 pandemic brought about the immediate need for enhanced safety protocols in health care centers. These protocols had to evolve as knowledge and understanding of the disease ...quickly broadened.
Aims
Through this study, the researchers aimed to understand the experiences of pediatric anesthesiologists at the Montreal Children's Hospital and the Shriners' Hospital Canada as they navigated the first wave of COVID‐19 at their institutions.
Methods
Nine participants from the Montreal Children's Hospital and the Shriners' Hospital were interviewed. Interviews were recorded, transcribed verbatim, and then analyzed using an applied philosophical hermeneutics approach.
Findings
Participants expressed their wish for simple and easy‐to‐apply protocols while recognizing the challenge of keeping up with evolving knowledge on the disease and its transmission. They pointed to some limitations and unintended consequences of the safety protocols and the system‐wide flaws that the COVID‐19 pandemic helped bring to light. They described their frustrations with some aspects of the safety protocols, which they at times felt could be more efficient or better suited for their daily practice.
Conclusions
The findings of this study highlighted the importance of listening to and empowering anesthesiology staff working in the field during crises, the implications of shifting from patient‐centered care to community‐centered care, and the fine line between sharing as much emerging information as possible and overwhelming staff with information.
Context: Scoliosis is an abnormal lateral curvature of the spinal column. Adolescent idiopathic scoliosis (AIS) is the most common type of scoliosis and affects approximately 1% to 3% of adolescents. ...AIS is more prevalent in females as they are ten times more likely to progress their spinal curvature requiring further treatment. The relationship between pain and idiopathic scoliosis has not been well documented and remains unclear in the literature. Evidence suggests that teenagers living with scoliosis could benefit from a support group. Curvy Girls is an international peer-run support group that aims to reduce scoliosis's emotional impact through education, mutual support, and self-empowerment. There is limited information on the lived experience of teenage girls living with scoliosis and the impact of peer-led scoliosis support groups.Objectives: This study endeavors (1) to gain insight into the lived experience of teenage girls living with scoliosis and (2) to understand how the peer support group, Curvy Girls, has impacted their lives.Approach: We interviewed sixteen members of Curvy Girls living with scoliosis. During these interviews, we explored the participants’ journeys with scoliosis through four lenses: (1) personal, (2) social, (3) healthcare, and (4) peer support group – experiences. The interviews were transcribed verbatim, and these transcripts were then interpreted using applied philosophical hermeneutics, which fosters a philosophy of experience.Findings:I.Personal Lens: The narratives of living with undiagnosed pain revealed confusion, solitude, and loneliness. The impact of labeling the pain (i.e., an official diagnosis) led to relief in some cases or irritation in some other cases.II.Social Lens: The concept of familiarity or unfamiliarity of scoliosis from their families, peers, and teachers may impact the acceptance of their condition and influence how they adapt to their social world.III.Healthcare Lens: The stories of negative healthcare experiences and their impact on teenage girls are uncovered. When the healthcare professional disregarded their pain, the adolescent girls felt hopeless and misunderstood. The teenage girls wanted to be included in treatment decisions that may endorse autonomy and independence during adolescence.IV.Peer support Lens: Curvy Girls provides a safe environment for these adolescent girls to engage. The power of sharing and communicating helps Curvy Girls members cope and feel a sense of belonging. Curvy Girls makes these teenage girls feel confident, empowered, and not feel alone.Significance: An insight into these teenage girls’ lived experiences allows for a better understanding of living with scoliosis and how a peer support group can help with this journey. This can promote collaboration between the teenage girls’ and the medical field, allowing them to share their voices for designing adaptive services
CONTEXT: Scoliosis is an abnormal lateral curvature of the spinal column and affects approximately 1% to 3% of adolescents. The relationship between pain and idiopathic scoliosis has not been well ...documented and remains unclear in the literature. Curvy Girls is an international peer-run support group that aims to reduce scoliosis's emotional impact through education, mutual support, and self-empowerment. OBJECTIVES: This study endeavors (1) to gain insight into the lived experience of teenage girls living with scoliosis and (2) to understand how the peer support group, Curvy Girls, has impacted their lives. APPROACH: We interviewed sixteen members of Curvy Girls living with scoliosis. The interviews were transcribed verbatim, and then interpreted using applied philosophical hermeneutics. FINDINGS:I. Personal Lens: The narratives of living with undiagnosed pain revealed confusion, solitude, and loneliness. The impact of labeling the pain (i.e., an official diagnosis) led to relief in some cases or irritation in some other cases. II. Healthcare Lens: The stories of negative healthcare experiences and their impact on teenage girls are uncovered. The teenage girls wanted to be included in treatment decisions that may endorse autonomy and independence during adolescence. III. Peer support Lens: Curvy Girls provides a safe environment for these adolescent girls to engage. The power of sharing and communicating helps Curvy Girls members cope and feel a sense of belonging. SIGNIFICANCE: An insight into these teenage girls’ lived experiences allows for a better understanding of living with scoliosis and how a peer support group can help with this journey.
The label of "patient-partner" is widely used when referring to a person living with a specific health condition that participates in research teams or consults on clinical practice guidelines. ...However, being a patient-partner says nothing about one's potential role outside a biomedical context. Labeling a person as such can be detrimental to their perception of themselves. The intention of this paper is to provide a philosophical conceptual framework to understand the complexities and consequences of labeling people as patients outside of direct healthcare. A philosophical hermeneutic approach was used to explore how labeling and self-stereotyping can affect the patient-partner, leading to the possible erosion of their personhood. The authors suggest that research teams instead employ the more accurate and dignified term, "patient perspective consultant." Accurate titles allow team members to relate to each other, leaving room for everyone to contribute meaningfully. The shift from patient-partner to patient perspective consultant does not change the nature of the role. It clarifies the context through increased accuracy, and adds dignity and purpose.
Applied Philosophical Hermeneutic Research Richard B. Hovey PhD; Marie Vigouroux BA; Nioushah Noushi MSc ...
International journal of qualitative methods,
05/2022, Letnik:
21
Journal Article
Recenzirano
Odprti dostop
The purpose of this article is to provide insight into the philosophy and practice of Applied Philosophical Hermeneutics as a unique approach for research in the health sciences. While there are ...other research approaches grounded in hermeneutics, this article focuses on Gadamer’s modern philosophical hermeneutics. During my 18 years as a hermeneutic researcher, graduate students and I have engaged with people with a wide variety of experiences such as preventable medical error, Indigenous health, adult and adolescent chronic pain, social responsibility in higher education, oral health care for autistic children, and the experiences of people living with Thalassemia. Applied Philosophical Hermeneutics offers an approach to help bring researchers, clinicians, and patients together within a community of active partnerships in research. All these projects employed Applied Philosophical Hermeneutics as an approach to gain a deeper and personal understanding of the unique experiences of these diverse groups of people. Hermeneutics remains somewhat confusing as the unmethod which may lead to a dismissive attitude toward this research approach. Therefore, the intention of this paper is to present a risk-free insight into hermeneutics, which hopefully will open-up conversations and new learning experiences among researchers, students, patients, and colleagues.
Celotno besedilo
Dostopno za:
DOBA, IZUM, KILJ, NUK, ODKLJ, PILJ, PNG, SAZU, UILJ, UKNU, UL, UM, UPUK
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