Anchored in Mannheim's theory, the concept of political generations captures how new movement recruits respond to shifting political contexts and become agents of change within a social movement. A ...key challenge when using this concept in generational analyses is to link context with agency. In this article, I make this link by focusing on the interactions between political contexts and movement agency. My study among two generations of feminist activism in Ecuador and Peru found that both cohorts interacted with two sociopolitical conditions—prevailing gender relations and notions of political action—when they were initially mobilized. These interactions took different forms for each cohort, thereby shaping their distinct understandings and practices of feminist activism, and continuing to have consequences for movement goals, strategies, and relationships overtime. For the earlier generation, which became active between the late 1970s and early 1990s, consequences meant practicing militancy to achieve goals, deploying vanguardism to execute a comprehensive strategy, and exerting autonomy to manage the actions of the powerful. I theorize the interactions between movement agency and political contexts as a mesostructure, where process and structure meet, thereby providing a more comprehensive account of the mechanism of change bringing about political generations.
Despite extensive research on the influence between social movements, knowledge remains limited to the basic social processes by which this occurs. This article locates these social processes in the ...accounts among young adult feminist activists in Ecuador and Peru. Qualitative interviews were conducted and analyzed among 21 young adult feminist activists from eight groups. The findings show how their feminist mobilizing was influenced by interactions with professionalized feminist organizations that were simultaneously inclusive and exclusionary. Three in/exclusionary interactions captured basic social processes whereby young adult feminist activists struggled to define modes of participation, organizational practices, and targets of engagement.
Following recent critiques of the metrocentric nature of global youth studies, this paper explores the role of place in current research on youth political action in Sweden. Drawing on Agnew's 2011. ..."Chapter 23: Space and Place." In Handbook of Geographical Knowledge, edited by J. Agnew, and D. Livingstone. London: Sage concept of place and using qualitative interpretive review as our method, we examined three sets of research publications on three different aspects of youth political action in Sweden. Our analysis found that place was addressed differently in each set of publications: youth political socialization and civic engagement were approached as placeless, street protests were examined as place assumed and urban justice movements were studied as place-based. The first two sets of publications contribute to reproducing a metrocentric understanding of youth political action, where urban areas are constructed as the key settings for political action among young people, while rural or peripheral areas are assumed to work in the same way or are depicted as non-political. By contrast, the publications on urban justice movements offered an alternative by exploring political action as place-based. The need to study the place-specific ways that young people do politics is discussed, with its potential to further the understanding of how young people do politics from where they are.
Existing research addresses violence in youth activism from two directions, broader societal violence or specific violence targeting political action. Nonetheless, these are explored separately ...according to type of activism, suggesting that this is the most relevant factor shaping violence in youth activism. This article captures other crucial factors by exploring both directions together and bringing in the concept of everyday violence. Grounded theory method and situational maps were used to collect and analyse qualitative interviews with young adult activists in three Swedish cities. Three conditions were found that crosscut youth activism to shape meanings and actions of unsafety: temporal, spatial and organizational. Across the three cities, temporal conditions produced shared experiences among young adult activists with social dimensions of unsafety, which corresponded to broader societal violence. In the third city, spatial and organizational conditions produced different experiences with political dimensions of unsafety, which corresponded to specific violence targeting political action.
Abstract
Background
Participatory research is particularly suitable in adressing know-do gaps in health systems. There is a disparity between what is known about the benefits of social participation ...and home care’s responsibility to provide conditions amenable to older adults’ social participation, and what is accomplished in home care practice. Home care workers are a large, low-power group, whose competences should be better harnessed. We carried out a participatory action research (PAR) project with the goal of generating an improved structure for identifying and alleviating loneliness. This article aims to explore the co-creative process of designing a work model that guides home care workers in supporting social participation among older care recipients.
Methods
Multimodal data from 16 PAR workshops with 14 home care workers were described and explored through the ‘recursive PAR process’ and the ‘framework for occupational enablement for change in community practice”.
Results
The PAR process is outlined through the objectives, activities, and work model, as well as enablement strategies employed throughout the PAR process; as are its opportunities, challenges and implications. The work model describes how care workers can act as discoverers of care recipients’ unmet social needs, employ intentional communication, and link to relevant professions or community services to alleviate loneliness among older home care recipients.
Conclusions
This research process included opportunities of collaborating with enthusiastic and competent home care workers, but also challenges of moving between theory and practice and maintaining active participation between workshops. The resulting work model is in step with the requirements of elderly care, is unique in its field and could comprise a first step toward a more systematic approach of assessing and addressing loneliness. The vivid delineation of the PAR process provided in this paper can aid other researchers in navigating participatory research in home care contexts.
Celotno besedilo
Dostopno za:
CEKLJ, DOBA, IZUM, KILJ, NUK, PILJ, PNG, SAZU, SIK, UILJ, UKNU, UL, UM, UPUK
Aims and objectives
To explore patients’ experiences of contact and interaction with healthcare professionals (HCPs) during the diagnostic process of melanoma.
Background
In Sweden, most patients ...with suspected skin lesions seek care at the primary level of services in the first instance. Previous research describes the diagnostic process as a complex journey with uncertainty. Nonetheless, the importance of contact and interaction between patient and HCPs during the diagnostic process is rarely explored.
Design
This study adopted a qualitative design in which semi‐structured interviews were conducted and the COREQ‐checklist for qualitative studies employed (EQUATOR guidelines).
Methods
A sample of 30 patients (15 women, 15 men) diagnosed with melanoma was included. Secondary analysis of interviews was carried out using qualitative content analysis.
Results
One theme emerged: Wishing to be perceived as a capable and resourceful person that consisted of three categories: (a) The need of being valued, (b) The need of being informed and (c) The need of taking actions.
Conclusions
Our results suggest that patients wish to be valued as capable and resourceful persons as well as to be provided with honest and sufficient information about the diagnosis and subsequent procedures. By fulfilling these wishes, HCPs can involve patients in the diagnostic process and reduce patients’ uncertainty. A need of supportive and accessible health care to manage the diagnostic process and to reduce patients’ struggle for care was also identified.
Relevance to the clinical practice
Patients are satisfied when health care is organised in a patient‐/person‐centred manner, that is, in accordance with patients’ needs, avoiding gatekeeping, and when HCPs interact respectfully in encounters. Accessible HCPs during the diagnostic process of melanoma are required to inform, support and navigate patients within the healthcare system and through their diagnostic journey.
Objectives
This study examined whether sociodemographic factors, including distance to hospital, were associated with differences in the diagnostic interval and the treatment interval for colorectal ...cancer in northern Sweden.
Methods
Data were retrieved from the Swedish cancer register on patients (n = 446) diagnosed in three northern regions during 2017–2018, then linked to data from Statistics Sweden and medical records. Also, Google maps was used to map the distance between patients' place of residence and nearest hospital. The different time intervals were analysed using Mann–Whitney U‐test and Cox regression.
Results
Differences in time to diagnosis were found between groups for income and distance to hospital, favouring those with higher income and shorter distance. The unadjusted regression analysis showed higher income to be associated with more rapid diagnosis (HR 1.004, CI 1.001–1.007). This association remained in the fully adjusted model for income (HR 1.004, CI 1.000–1.008), but not for distance. No differences between sociodemographic groups were found in the treatment interval.
Conclusion
Higher income and shorter distance to hospital were in the unadjusted models associated with shorter time to diagnosis for patients with CRC in northern Sweden. The association remained for income when adjusting for other variables even though the difference was small.
With a spatial analytical framework, we study Take Back the Night demonstrations as a way of mobilizing for safety and claiming the right to the city. The marches are a symbolic display of women's ...distress about living in fear of violence. It is a critique of society's inability to handle the problem of prevailing gendered power relations and the unequal access to city spaces that stem from these. The aim of this paper is to examine feminist struggles to challenge gendered spatial power relations, focusing on Take Back the Night mobilization. Hence, this qualitative study focuses Take Back the Night demonstrations as a phenomenon and as an actual spatial strategy, by analysing representations regarding Take Back the Night in Sweden at large, and in Malmö, Sweden's third largest city, in particular. We discuss feminist efforts to create temporary safe spaces in terms of the demonstrations' emancipatory potential and how these spatial claims provoke resistance. The demonstrations and the reactions they create reveal existing inequalities and power structures.
Assessment of self-conscious emotions is important to develop tailored interventions for people with chronic obstructive pulmonary disease (COPD). Previous instruments have largely been developed for ...mental health populations. The Self-Conscious Emotions in COPD Questionnaire was the first instrument to assess self-conscious emotions in people with COPD, but it was only available in English.
The aim was to translate the Self-Conscious Emotions in COPD Questionnaire into Swedish and to evaluate its psychometric properties and internal structure in a Swedish context.
The translation process included forward and backward translation, a multidisciplinary meeting, assessment of content validity, and cognitive interviews. The translated instrument was tested in a sample of 173 people with COPD between September 2021 and September 2022. Parallel analysis (PA), exploratory factor analysis (EFA), and test-retest reliability was performed.
The content validity index (CVI) for the instrument was 0.88. Based on the PA, an EFA with a two-factor solution was conducted, with a high Cronbach's alpha (0.786–0.821), and one item about self-blame was excluded. The two factors were labelled: The burden of living with a disability and The desire to hide vulnerability. Test-retest reliability showed no difference between scale scores on factor or item level, except for one item.
The Swedish Self-Conscious Emotions in COPD showed good validity and reliability. One item was excluded from the two subscales, indicating that the instrument needs to be further developed to cover the concept of self-blame. The instrument is expected to be a valuable tool for assessing self-conscious emotions in people with COPD.
•The Self-Conscious Emotions in COPD questionnaire was translated into Swedish.•A small number of missing items was registered in a sample of 173 people with COPD.•The instrument showed good validity and reliability.•It can facilitate conversations about complex emotional issues in clinical practice.•It can also be used to expand knowledge of COPD-related self-conscious emotions.
This article aims to locate the social practices of activist groups online and clarify how they collectively practice gender and race. It draws upon a qualitative study of two locale‐oriented groups ...that sought to improve safe public space in their respective cities in Sweden. Using Grounded Theory method, I observed and analyzed each group's public Facebook site from initiation until decline or maintenance. The findings captured five routine behaviors done by the groups in a tacit manner: responding to a concrete incident, creating meaningful participation, fostering substantive debate, formulating a long‐term vision, and questioning social hierarchies. Working with theories of social, gendered, and racialized practices, I analyze these behaviors as practices available to the activist groups to do, yet open for social change through their performance. Although all five practices were detected among both groups, the two groups performed them differently and this had consequences for their maintenance as well as their ability to challenge gender and racial hierarchies. The analysis makes an important contribution to social movement scholarship by showing how tacit and routine behavior forms the backbone of any collective action and is a crucial site for the (re)construction of social hierarchies.