•51. 6 % of patients showed fatigue.•Significant differences were found between fatigued and non-fatigued patients in disability, depression, HRQoL, social network, processing speed.•The results of ...this study confirm the relationship between perceived fatigue and HRQoL, social network and information processing speed in patients with MS.•It is relevant to study fatigue and treat it appropriately, in order to avoid psychological and social dysfunctions in patients.
To study the relationship between perceived fatigue and heath related quality of life (HRQoL), social support and cognition in an Argentinean population of patients with MS (PwMS).
128 PwMS were studied, 75 women (58 %). Mean age: 40 ± 10.49 years-old, education: 14 ± 3.04, Expanded Disability Status Scale (EDSS): 2.43 ± 1.87, evolution: 10.07 ± 7.23 years. Instruments: Fatigue Severity Scale (FSS); EDSS; Beck's Depression Inventory II (BDI-II); International Quality of Life questionnaire (MusiQoL); Medical Outcomes Study Social Support Survey (MOS); BICAMS Battery, 7/24 Spatial Recall Test, Paced Auditory Serial Task (PASAT-3), Word list generation task (WLG).
Sixty-six patients (51.6 %) presented fatigue. Significant differences were found between fatigued and non-fatigued patients in EDSS and BDI II (p < 0.001). Fatigue was associated with age, EDSS and BDI II (p < 0.05). When analyzing differences in HRQoL between fatigued and non-fatigued patients statistically significant differences were found in MusiQol (p < 0.05). FSS proved to be an independent predictor of HRQoL (typified β =-0.612 and -0.287, p < 0.05). Fatigued patients had fewer friends in their social support network (p = 0.031) and worse performance in PASAT. FSS was established as an independent predictor of PASAT (β = -0.280, p = 0.009)
Fatigue is one of the most common symptoms in Multiple Sclerosis (MS) and has a great impact on patients daily life. This study highlights the importance of studying fatigue and treating it properly, since otherwise, it contributes to the dysfunction of patients daily life with psychological and social consequences.
Background
Coping is defined as a set of cognitive and behavioral efforts made to master stressful specific demands. Adaptation to chronic diseases, such as Multiple Sclerosis (MS), depends on the ...effectiveness of coping.
Objective: To assess the psychometric properties of the Coping Responses Inventory (CRI-A) in persons with MS (PwMS), verifying the transferability of the measure, already validated in the Argentine general population, and to describe the types of coping strategies available for PwMS.
Methods: 90 PwMS were included.
Outcome measures: CRI-A Inventory, Expanded Disability Status Scale (EDSS), Beck Depression Inventory, Fatigue Severity Scale and MS International Quality of Life questionnaire.
Results: Descriptive data is as follows: mean age (years): 40.97 ± 12.85; years of education: 13.46 ± 3.93; EDSS: 2.48 ± 1.79; disease evolution (years): 10.76 ± 9.72; depression: 13.92 ± 10.45; fatigue 3.77 ± 1.72. The psychometric properties of the CRI-A Inventory observed in the Argentine general population are present in the MS sample as well, with adequate validity and reliability. The respondents most frequently utilized a problem-focused coping style.
Conclusions: Results showed the CRI-A has good transferability properties from the Argentine general population to the MS population.
Social support is crucial for persons with multiple sclerosis (MS). We sought to analyze differences in perceived social support in persons with MS vs controls; to study associations between ...perceived social support, clinical measures, and health-related quality of life (HRQOL) variables in persons with MS; and to establish a predictive value of perceived social support for HRQOL.
We studied 151 persons with MS (mean ± SD: age, 42.01 ± 9.97 years; educational level, 14.05 ± 3.26 years) and 89 controls (mean ± SD: age, 41.46 ± 12.25 years; educational level, 14.60 ± 2.44 years) using the Medical Outcomes Study Social Support Survey (MOS-SSS), Expanded Disability Status Scale, Fatigue Severity Scale, Beck Depression Inventory, and Multiple Sclerosis International Quality of Life (MusiQoL) questionnaire. Parametric and nonparametric statistical methods were used accordingly;
< .05.
Persons with MS exhibited lower scores on the MOS-SSS's overall support index (
= -1.98,
= .04) and on each functional subscale (
= -2.56 to -2.19,
< .05). No significant differences were found on the social support structural component (
> .05). Significant associations were observed between social support and depression and fatigue (
= -0.20 to -0.29,
< .05) and with MusiQoL dimensions (
= -0.18 to 0.48,
< .05). Multiple regression analysis showed all 4 tested models contributed to HRQOL-explained variance (41%-47%). The emotional/informational support model explained the most HRQOL variability (47%).
Persons with MS perceived reduced social support, presenting lower functional scores than controls. Perceived social support proved to be a predictor of HRQOL. These findings should be considered during therapeutic treatment.
Comprende la satisfacción por la profesión elegida de los estudiantes de enfermería de una universidad pública. El estudio es de tipo cualitativo, método descriptivo. Participan ocho internos de ...enfermería, determinándose el número en base al criterio de saturación, los datos son recolectados mediante la entrevista semiestructurada. El análisis tiene cuatro categorías: “Eligiendo y descubriendo la profesión de enfermería”, “Satisfacción por haber elegido la profesión de enfermería”, “Aspectos que interfieren con la satisfacción por la elección de la profesión en el interno de Enfermería” y “Proyecciones a futuro sobre el ejercicio de su profesión”. Encuentra que la elección profesional en los estudiantes de enfermería está guiada por su sentido de vocación de servicio y ayuda al prójimo, y pese a que no fue su primera opción; decidieron culminar sus estudios motivados por la atención holística que estos profesionales brindan a los pacientes. La mayor satisfacción que sienten por haber elegido su carrera es el agradecimiento de los pacientes, también debido al amplio campo laboral que les ofrece su profesión, pero sienten que se ve afectada por la falta de identidad, liderazgo y la imagen que se tiene de esta profesión. Cabe resaltar que los internos tienen un gran interés por continuar estudios de especialidad y posgrado, así como trabajar de manera independiente; sin embargo no tienen decidida aún la especialidad.
Tesis
Despite the increasing use of comprehensive rehabilitation models for people with severe mental illness (SMI), there are still limitations to their implementation and replicability in a consensual ...way, particularly in Latin American countries. The REINTEGRA program aims to be a standardized model of comprehensive rehabilitation focused on psychosocial and cognitive improvement through a set of interventions on different areas of people's functionality, with the goal of reintegrating people with SMI into the labour market. In this paper we summarize the protocol for its subsequent implementation in a mental health institution in Mexico.
The protocol is based on a quasi-experimental, prospective longitudinal study, with a pragmatic or naturalistic control group. It will be carried out in three phases. Phase 1 consists of a series of interventions focused on psychosocial improvement; Phase 2 focuses on cognitive and behavioral improvement treatments; and Phase 3 targets psychosocial recovery through rehabilitation and reintegration into the labour market. The overall procedure will be monitored with standarized evaluations at different stages of the program.
This study presents a model of integral rehabilitation of people with SMI. At the moment, one of the obstacles to overcome is the organization and procedural control of the different actors needed for its implementation (nurses, psychologists, doctors, companies, institutions, etc.). REINTEGRA will be the first comprehensive rehabilitation model that includes systematized procedures for job reinsertion for people with SMI in Mexico, which aims to be a standardized tool of easy adaptation and the replicability for other mental health centers and institutions.
Celotno besedilo
Dostopno za:
DOBA, IZUM, KILJ, NUK, PILJ, PNG, SAZU, SIK, UILJ, UKNU, UL, UM, UPUK
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