Whether long coronavirus disease pertains to children as well is not yet clear.
The authors performed a survey in children suffering from persistent symptoms since initial infection. A total of 510 ...children infected between January 2020 and January 2021 were included.
Symptoms such as fatigue, headache, muscle and joint pain, rashes and heart palpitations and issues such as lack of concentration and short-term memory problems were particularly frequent and confirm previous observations, suggesting that they may characterize this condition.
A better comprehension of long coronavirus disease is urgently needed.
Amali Lokugamage and colleagues argue that patients are still struggling to get their voices heard above doctors, a situation that risks “structural iatrogenesis’
Lack of GP awareness has led to some parents whose children have long COVID feeling that their children's symptoms were minimized, experiences highlighted in the recent All Party Parliamentary Group ...(APPG) about long COVID in children on 26 January 2021. Parents described desperation and fear of seeking further help, not wanting to be branded with the stigma of 'Munchausen syndrome by proxy.' While the adult population of long COVID sufferers were assembling on social media groups and collecting data, children were discounted under the misconception that they did not get COVID-19 severely, that they did not transmit COVID-19, and that they were often asymptomatic. Even when the facts of paediatric inflammatory multisystem syndrome temporally associated with COVID-19 (PIMS-TS) in children started to present themselves,7 it was understood that this was very rare. When parents started to wonder why their children were becoming ill from COVID-19 and not making a full recovery, there was no narrative to enable them to make sense of this.
Boarding schools exist to provide education for children, but this involves the child leaving the family home and residing in an educational institution. Identity Process Theory suggests that such a ...change in circumstances can threaten the child’s identity, which triggers coping strategies and impacts on the individual’s self-concept during both childhood and adulthood. This study undertook an Interpretative Phenomenological Analysis of semi-structured interviews conducted with five adults who boarded as children. The focus was on exploring participants’ beliefs in terms of how the boarding experience affected their sense of self. Emerging themes relate to the (i) coping strategies used by participants during childhood, such as amnesia, compartmentalising, compliance and acceptance, and (ii) long-term effects of boarding on identity, self-concept and intimate relationships. Findings also highlight the interplay of factors such as privilege and social class, which were reported as motives for participants’ parents choosing boarding for their children. The study raises important questions about the long-term health impacts of sending children away to board.
A substantial portion of people with COVID-19 subsequently experience lasting symptoms including fatigue, shortness of breath, and neurological complaints such as cognitive dysfunction many months ...after acute infection. Emerging evidence suggests that this condition, commonly referred to as long COVID but also known as post-acute sequelae of SARS-CoV-2 infection (PASC) or post-COVID-19 condition, could become a significant global health burden.
While the number of studies investigating the post-COVID-19 condition is increasing, there is no agreement on how this new disease should be defined and diagnosed in clinical practice and what relevant outcomes to measure. There is an urgent need to optimise and standardise outcome measures for this important patient group both for clinical services and for research and to allow comparing and pooling of data.
A Core Outcome Set for post-COVID-19 condition should be developed in the shortest time frame possible, for improvement in data quality, harmonisation, and comparability between different geographical locations. We call for a global initiative, involving all relevant partners, including, but not limited to, healthcare professionals, researchers, methodologists, patients, and caregivers. We urge coordinated actions aiming to develop a Core Outcome Set (COS) for post-COVID-19 condition in both the adult and paediatric populations.
Celotno besedilo
Dostopno za:
DOBA, IZUM, KILJ, NUK, PILJ, PNG, SAZU, SIK, UILJ, UKNU, UL, UM, UPUK
The purpose of this paper is to describe the development of a series of six, self-paced online practice educator development modules and to describe the preliminary program evaluation conducted for ...them.
Six online learning modules were developed. In the preliminary program evaluation, a mixed methods approach was used to investigate whether module content was effective in conveying useful information to practice educators and was reaching those at a geographic distance from the University of British Columbia (UBC) in Vancouver, Canada. User demographic data, module completion results, user evaluation survey responses, and content expert reviews of the modules were collected and analyzed for quality assurance and program evaluation.
The preliminary evaluation results indicated a positive response. The evaluation survey results showed that most practice educators found their understanding of the subject had increased from their personal baseline after completing the module. From the total of 197 users that had registered for the Practice Educator Resource Centre and self-declared their geographic location, 56% were categorized as being within the Lower Mainland, while 44% were located outside of this area, at a geographic distance from UBC.
This early data indicated the modules were reaching practice educators across BC. Continual evaluation will be needed to support the preliminary positive practice educator user experience.
The self-paced online practice educator modules are an accessible and possibly effective means of providing skills and training to new and current pharmacy practice educators.
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