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  • A comparison of parent-repo...
    Allahham, Amira; Cooper, Matthew N.; Mergelsberg, Enrique; Fear, Mark W.; Martin, Lisa J.; Wood, Fiona M.

    Burns, August 2023, 2023-Aug, 2023-08-00, 20230801, Letnik: 49, Številka: 5
    Journal Article

    Quality of life of paediatric patients after burn injury is often assessed through parents who may score differently to their child. Non-severe burns are the most common type of burn injury in Western Australia, however, despite low severity and high survival rates, they can cause long term physical and psychosocial problems which need to be detected early in order to provide patients with optimal holistic care. Demographic and clinical data were collected from paediatric patients (5–16-year-old) with non-severe burns (<20% total body surface area), and Paediatric quality of life (PedsQL) questionnaires were collected from both the patient and their parent. Two cohorts of patients were assessed: first, those at approximately six months after burn, and second, those more than one-year after burn. Differences between parent-scores and self-scores were analysed using multivariate linear regression to assess the relationship between risk factors and observed differences in PedsQL scores. Parents reported poorer Psychosocial Function (PSF) for younger children (p = 0.01) and for patients from higher socioeconomic status areas (p = 0.05) compared to their children. In the ‘Early Recovery Cohort’, female patients had significantly different scores to their parents (p < 0.01). In the ‘Late Recovery Cohort’, parents rated older patients lower than they rated themselves (p = 0.03). Age at burn, socioeconomic status, and female gender may increase the discrepancy in quality-of-life assessments between parents and patients. •For early recovery, there are more differences if patients are younger, female and/or from low socioeconomic backgrounds.•For long term recovery, there is high agreeance in psychosocial scores, but older age at burn increases differences.•The influence of demographic and clinical factors on psychosocial scores diminishes over time.