Type 1 diabetes is one of the most common chronic diseases in childhood. Active parental involvement, parental support in the diabetes management and family functioning are associated with optimal ...diabetes management and glycemic control. The purpose of this study was to assess parental satisfaction with participation in the group and their perceptions of the impact of the intervention on living and coping with childrens T1D.
A sample of 34 parents of children with T1D participated in this trend study. The participants' experience and satisfaction with support group was measured by a self- evaluation questionnaire, designed for the purpose of the present study.
Quantitative data show that parents were overall satisfied with almost all measured items of the evaluation questionnaire (wellbeing in the group, feeling secure, experiencing new things, being able to talk and feeling being heard) during the 4-year period. However, parents from the second and third season, on average, found that the support group has better fulfilled their expectations than the parents from the first season (p = 0,010). The qualitative analysis of the participants' responses to the open-ended questions was underpinned by four themes: support when confronting the diagnosis, transformation of the family dynamics, me as a parent, exchange of experience and good practice and facing the world outside the family.
The presented parent support group showed to be a promising supportive, therapeutic and psychoeducative space where parents could strengthen their role in the upbringing of their child with T1D.
Youth and young adults with type 1 diabetes are at a great risk for developing depression and diabetes specific distress, therefore, systematic psychological screening is recommended. Routine ...psychological screening was implemented in Slovene diabetes clinic for children, adolescents and young adults in 2012. One-year results are presented.
Adolescents and young adults (N = 159, aged 11 - 25 years), attending the obligatory yearly educational outpatient visit at University Children's Hospital, Ljubljana, Slovenia, were examined using questionnaires measuring depression (depression scale from Slovene version of Trauma Symptom Checklist for Children) and diabetes distress (Diabetes Distress Screening Scale). Six additional items were included to assess the fear of hypoglycemia and family support. Socio-demographic and diabetes-related data were collected. Questionnaires were analyzed by a psychologist, and the patients that scored above cut-off point were invited to an individual psychological assessment.
Of the sample, 1.3 % reached the threshold for elevated depressive symptoms, and 32.7 % reported significant diabetes distress. The need for psychological support from a specialist was expressed by 5.0 %. There were statistically significant associations between all psychological variables; moreover, better glycemic control was associated with lower diabetes distress and better family support. Nine patients (5.7 %) started with psychological treatment according to the referrals after screening.
The results after one year of psychological screening in Slovene type 1 diabetes population displayed small rates of depression and a large proportion of diabetes distress. Only a small percentage of patients attended the offered individual psychological assessment.
Objectives. Type 1 diabetes is one of the most common chronic diseases in childhood. Active parental involvement, parental support in the diabetes management and family functioning are associated ...with optimal diabetes management and glycemic control. The purpose of this study was to assess parental satisfaction with participation in the group and their perceptions of the impact of the intervention on living and coping with childrens T1D.
Methods. A sample of 34 parents of children with T1D participated in this trend study. The participants’ experience and satisfaction with support group was measured by a self- evaluation questionnaire, designed for the purpose of the present study.
Results. Quantitative data show that parents were overall satisfied with almost all measured items of the evaluation questionnaire (wellbeing in the group, feeling secure, experiencing new things, being able to talk and feeling being heard) during the 4-year period. However, parents from the second and third season, on average, found that the support group has better fulfilled their expectations than the parents from the first season (p = 0,010). The qualitative analysis of the participants’ responses to the open-ended questions was underpinned by four themes: support when confronting the diagnosis, transformation of the family dynamics, me as a parent, exchange of experience and good practice and facing the world outside the family.
Discussion. The presented parent support group showed to be a promising supportive, therapeutic and psychoeducative space where parents could strengthen their role in the upbringing of their child with T1D.
Izhodišče. Sladkorna bolezen tipa 1 je ena izmed pogostejših kroničnih bolezni v otroštvu. Optimalno vodenje in presnovna urejenost otrokove sladkorne bolezni sta povezana z aktivno vključenostjo staršev/ skrbnikov, podporo otroku pri nadzoru nad boleznijo in funkcionalnostjo družine. Raziskava predstavlja oceno zadovoljstva staršev s programom skupine za starše in njihovo doživljanje vpliva omenjenega programa na življenje otroka in spoprijemanje z njegovo SBT1.
Metode. V raziskavi je sodelovalo 34 staršev otrok s SBT1. Udeleženci so izpolnili evalvacijski vprašalnik o izkušnji in zadovoljstvu s skupino za starše, ki je bil sestavljen za namen te raziskave.
Rezultati. Kvantitativni podatki so pokazali, da so bili starši v splošnem zadovoljni pri skoraj vseh merjenih postavkah (počutje v skupini, občutek varnosti, odkrivanje novih stvari, možnost pogovora, občutek slišanosti) v štirih sezonah skupine za starše, razen pri postavki izpolnitev pričakovanj. Udeleženci iz druge in tretje sezone so poročali, da je skupina izpolnila njihova pričakovanja v večji meri, kot pa so o svojih pričakovanjih poročali udeleženci iz prve sezone (p = 0,010). Kvalitativna analiza odprtih vprašanj je pokazala štiri teme: opora skupine pri soočanju z diagnozo SBT1, preoblikovanje družinske dinamike, vzgoja otroka s SBT1, izmenjava konkretnih izkušenj in dobrih praks ter soočanje z okoljem. Tema »opora skupine pri soočanju z diagnozo SBT1« je prevladujoča v vseh štirih sezonah.
Razprava. Skupina za starše se kaže kot pomemben terapevtski, podporni in psihoedukativni dejavnik; v njej starši ob voditeljih in drugih udeležencih krepijo svojo pomembno vlogo, ki jo imajo v življenju otroka s SBT1.
Izhodišče. Sladkorna bolezen tipa 1 je ena izmed pogostejših kroničnih bolezni v otroštvu. Optimalno vodenje in presnovna urejenost otrokove sladkorne bolezni sta povezana z aktivno vključenostjo ...staršev/ skrbnikov, podporo otroku pri nadzoru nad boleznijo in funkcionalnostjo družine. Raziskava predstavlja oceno zadovoljstva staršev s programom skupine za starše in njihovo doživljanje vpliva omenjenega programa na življenje otroka in spoprijemanje z njegovo SBT1.
Namen raziskave. Pri mladih s sladkorno boleznijo tipa 1 je prisotno večje tveganje za razvoj depresivne motnje, pogosto pa ti bolniki poročajo tudi o obremenjenosti s sladkorno boleznijo. Zato se ...priporoča psihološko presejalno testiranje. V letu 2012 smo presejalno testiranje za mladostnike in mlade odrasle uvedli tudi v Sloveniji ter prve rezultate predstavili v tej raziskavi.
Aim. Youth and young adults with type 1 diabetes are at a great risk for developing depression and diabetes specific distress, therefore, systematic psychological screening is recommended. Routine ...psychological screening was implemented in Slovene diabetes clinic for children, adolescents and young adults in 2012. One-year results are presented.
Methods. Adolescents and young adults (N = 159, aged 11 - 25 years), attending the obligatory yearly educational outpatient visit at University Children’s Hospital, Ljubljana, Slovenia, were examined using questionnaires measuring depression (depression scale from Slovene version of Trauma Symptom Checklist for Children) and diabetes distress (Diabetes Distress Screening Scale). Six additional items were included to assess the fear of hypoglycemia and family support. Socio-demographic and diabetes-related data were collected. Questionnaires were analyzed by a psychologist, and the patients that scored above cut-off point were invited to an individual psychological assessment.
Results. Of the sample, 1.3 % reached the threshold for elevated depressive symptoms, and 32.7 % reported significant diabetes distress. The need for psychological support from a specialist was expressed by 5.0 %. There were statistically significant associations between all psychological variables; moreover, better glycemic control was associated with lower diabetes distress and better family support. Nine patients (5.7 %) started with psychological treatment according to the referrals after screening.
Conclusions. The results after one year of psychological screening in Slovene type 1 diabetes population displayed small rates of depression and a large proportion of diabetes distress. Only a small percentage of patients attended the offered individual psychological assessment.
Namen raziskave. Pri mladih s sladkorno boleznijo tipa 1 je prisotno večje tveganje za razvoj depresivne motnje, pogosto pa ti bolniki poročajo tudi o obremenjenosti s sladkorno boleznijo. Zato se priporoča psihološko presejalno testiranje. V letu 2012 smo presejalno testiranje za mladostnike in mlade odrasle uvedli tudi v Sloveniji ter prve rezultate predstavili v tej raziskavi.
Metode. Rednega letnega edukacijskega pregleda na Kliničnem oddelku za endokrinologijo, diabetes in bolezni presnove Pediatrične klinike se je udeležilo 175 mladostnikov in mladih odraslih, starih od 11 do 25 let. Od teh jih je 159 rešilo presejalni vprašalnik, ki je ocenjeval depresivne simptome (lestvica depresije iz vprašalnika o travmatiziranosti otrok in mladostnikov) in obremenjenost s sladkorno boleznijo (presejalna lestvica za oceno obremenjenosti s sladkorno boleznijo). Dodanih je bilo šest postavk za oceno strahu pred hipoglikemijo in podporo družine. Zbrali smo podatke o sladkorni bolezni in sociodemografskem ozadju. Psiholog je pregledal vprašalnike in podal kratko mnenje, mladostnike in odrasle, ki so presegli kritično število točk, pa smo povabili na posvet in dodatno obravnavo k psihologu.
Rezultati. Rezultate, ki pomenijo povečano tveganje za depresijo, je doseglo 1,3 % udeležencev, 32,7 % udeležencev pa je poročalo o pomembni obremenjenosti s sladkorno boleznijo. Željo po psihološki obravnavi je izrazilo 5 % preiskovanih. Prisotna je bila statistično pomembna povezanost med vsemi psihološkimi parametri. Dobra presnovna urejenost je bila povezana z manjšo obremenjenostjo s sladkorno boleznijo in boljšo podporo družine. Devet (5,7 %) mladih je po presejalnem psihološkem testiranju pričelo obravnavo pri psihologu.
Zaključki. Prvo leto presejalnega psihološkega testiranja mladih s sladkorno boleznijo tipa 1 je pokazalo nizek delež udeležencev z depresivnimi simptomi in visok delež pacientov, ki so izrazito obremenjeni s sladkorno boleznijo. Le majhen delež udeležencev se je odzval na povabilo na obravnavo pri psihologu in začel obravnavo.
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