In this article I propose a method of interviewing for descriptive phenomenological research that offers an explicit, theoretically based approach for researchers. My approach enables application of ...descriptive phenomenology as a total method for research, and not one just focused on data analysis. This structured phenomenological approach to interviewing applies questions based on themes of experience contextualization, apprehending the phenomenon and its clarification. The method of questioning employs descriptive and structural questioning as well as novel use of imaginative variation to explore experience. The approach will help researchers understand how to undertake descriptive phenomenological research interviews.
In recent years, interventions and health policy programmes have been established to promote patient empowerment, with a particular focus on patients affected by long-term conditions. However, a ...clear definition of patient empowerment is lacking, making it difficult to assess effectiveness of interventions designed to promote it. The aim in this study was to develop a conceptual map of patient empowerment, including components of patient empowerment and relationships with other constructs such as health literacy, self-management and shared decision-making.
A mixed methods study was conducted comprising (i) a scoping literature review to identify and map the components underpinning published definitions of patient empowerment (ii) qualitative interviews with key stakeholders (patients, patient representatives, health managers and health service researchers) to further develop the conceptual map. Data were analysed using qualitative methods. A combination of thematic and framework analysis was used to integrate and map themes underpinning published definitions of patient empowerment with the views of key UK stakeholders.
The scoping literature review identified 67 articles that included a definition of patient empowerment. A range of diverse definitions of patient empowerment was extracted. Thematic analysis identified key underpinning themes, and these themes were used to develop an initial coding framework for analysis of interview data. 19 semi-structured interviews were conducted with key stakeholders. Transcripts were analysed using the initial coding framework, and findings were used to further develop the conceptual map. The resulting conceptual map describes that patient empowerment can be conceived as a state ranging across a spectrum from low to high levels of patient empowerment, with the level of patient empowerment potentially measurable using a set of indicators. Five key components of the conceptual map were identified: underpinning ethos, moderators, interventions, indicators and outcomes. Relationships with other constructs such as health literacy, self-management and shared decision-making are illustrated in the conceptual map.
A novel conceptual map of patient empowerment grounded in published definitions of patient empowerment and qualitative interviews with UK stakeholders is described, that may be useful to healthcare providers and researchers designing, implementing and evaluating interventions to promote patient empowerment.
Refugee youth constitute around a third of the refugee population in Germany. We studied the experiences of newly arrived Syrian and Iraqi refugee youth, aged 14 to 18 years (N = 20), in Germany. We ...utilized semi-structured interviews and thematic analysis to investigate (a) the main challenges faced by youth and (b) their main coping resources to deal with these challenges. We grouped challenges into three levels: the individual level, the immediate social level, and the broader societal level. The most frequently mentioned challenges in our sample related to psychological wellbeing, school, friendship, accommodation, and discrimination. Youth reported relying on social support (friends, family, social services) and on themselves (through avoidance, persistence, activity seeking, active engagement) to cope with their challenges. Our findings provide insights into refugee youth’s experiences in Germany, encompassing the acculturative, developmental, and generational aspects of their lives and demonstrating their coping and resilience. We discuss our results in relation to the literature on refugee youth in high-income countries.
This article theorizes the use of knowledge in interviews, focusing on confronting interview participants with knowledge generated from prior research. This article explains when confronting ...participants with knowledge is ethically and epistemologically preferable to alternatives such as debriefing or not disseminating. We share examples from studies where minor league baseball players read machine learning predictions of their chances of reaching the major leagues, and esports competitors viewed illustrations of the prize earning distribution in their chosen game. The article elaborates on the ethical considerations of using confrontational knowledge in interviews and identifies three guidelines for using the strategy.
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