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Lahko bi pozdravili vse otroke s tem sindromom : koncert Imeti rad za UrbanaBožič, Katja, 1972-Čeprav se je družina Miroševič pred meseci za nekaj časa umaknila iz javnega življenja (zdaj so že nazaj), ker se jim je aprila pridružila nova članica Zara, so bile akcije zbiranja denarja ter ... raziskave in izdelava zdravila za malega Urbana, ki se je rodil z okvaro na genu CTNNB1, ves čas v polnem teku. S podporo vseh Slovencev in Slovenk jim je uspelo zbrati že milijon in pol evrov. Še pol milijona pa potrebujejo za začetek proizvodnje zdravila.V ta namen Rotary klub Sevnica v soboto, 4. marca, v Športnem domu Sevnica organizira dobrodelni koncert Imeti rad, na katerem bodo med drugim nastopili Godba Sevnica, Oktet Jurij Dalmatin, Mladinski pevski zbor OŠ Tržišče in posebni gostje Čuki.Source: Jana. - ISSN 0350-9125 (Št. 4, 24. jan. 2023, str. 8)Type of material - article, component part ; adult, seriousPublish date - 2023Language - slovenianCOBISS.SI-ID - 139096067
Author
Božič, Katja, 1972-
Topics
Miroševič (družina) |
Genska terapija |
Humanitarnost |
Sevnica |
Domoznanstvo |
dobrodelnost |
dobrodelni koncerti |
nevrorazvojne motnje |
sindrom gena CTNNB1
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Links to authors' personal bibliographies | Links to information on researchers in the SICRIS system |
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Božič, Katja, 1972- |
Source: Personal bibliographies
and: SICRIS
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