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  • Ethical considerations when conducting pan-European research with and for adolescent young carers
    Hanson, Elizabeth ...
    Adolescent young carers (AYCs) are a sub-group of young carers who carry out significant or substantial caring tasks and assume a level of responsibility which would usually be associated with an ... adult. They are a potentially vulnerable group of minors because of the risk factors associated with their caring role. AYCs face a critical transition phase from adolescence to adulthood often with a lack of tailored support from service providers. The recently completed European funded ‘ME-WE’project, which forms the focus of this paper, aimed to change the‘status quo’ by advancing the situation of AYCs in Europe, via responsive research and knowledge translation actions. This paper outlines the participatory, co-creation approach employed in the project to optimise AYC’s involvement. It describes the ethical framework adopted by the project consortium to ensure the wellbeing of AYCs within all project activities. Ethical issues that arose in the field study work in all six countries are presented, followed by a discussion of the level of success or otherwise of the consortium to address these issues. The paper concludes with lessons learned regarding ethically responsible research with and for AYCs that are likely transferable to other vulnerable research groups and pan-European projects.
    Source: Ethics & social welfare. - ISSN 1749-6535 (Vol. 17, no. 2, 2023, str. 125-158)
    Type of material - article, component part
    Publish date - 2023
    Language - english
    COBISS.SI-ID - 151249411

    Link(s):

    Repository of the University of Ljubljana – RUL
    DOI

source: Ethics & social welfare. - ISSN 1749-6535 (Vol. 17, no. 2, 2023, str. 125-158)
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