Paliativna oskrba otrok je specializirana paliativna oskrba z določenimi posebnostmi v primerjavi s paliativno oskrbo odraslih. Enačenje načel sodobne paliativne oskrbe otroka s protokoli opustitve ...in odtegnitve zdravljenja je odraz nepoučenosti in je povsem napačno. Multidisciplinarni tim za paliativno oskrbo otrok na terciarni ravni sestavljajo otrokovi lečeči subspecialisti, medicinske sestre, psiholog in po potrebi drugi zdravstveni sodelavci, med njimi tudi tisti z dodatnim znanjem iz paliativne medicine in zdravstvene nege. Tim oblikuje načrt nadaljnjega zdravljenja ter postopke oskrbe nenehno prilagaja rasti in razvoju otroka, napredovanju bolezni, slabšanju bolnikovega stanja in pojavljanju novih težav. Vsebina načrta paliativne oskrbe je odvisna od trenutka vključitve bolnika in njegove družine, vrste bolezni ter prepoznanih in izraženih potreb. V pediatriji se potreba po uvedbi paliativnega pristopa pri zdravstvenih delavcih pogosto prepozna prepozno ali pa se sploh ne. S širjenjem znanja in zavedanja koristi sodobne pediatrične paliativne oskrbe za bolnike in njihove svojce poskušamo doseči, da postane paliativni pristop pri bolnih otrocih z neozdravljivo napredujočo boleznijo del vsakodnevne klinične prakse. Ne gre le za eno neodtujljivih pravic najtežje bolnih otrok, gre tudi za delo zdravstvenih delavcev v skladu z etičnim kodeksom, da zdravljenje, ki je bolniku bolj v breme kot v korist, etično ni utemeljeno.
Vittoria Colonna: Soneti Senegačnik, Brane
Keria: Studia Latina et Graeca,
12/2023, Volume:
25, Issue:
1
Journal Article
Peer reviewed
Open access
Pesnico Vittorio Collona (1492–1547) literarna zgodovina običajno (in upravičeno) uvršča v tok petrarkizma, a je izjemen pojav, ne le zato ker so ženski glasovi v 15. stoletju razmeroma redki, temveč ...zaradi pesniške izjemnosti, katere pomen presega zgodovinsko dobo njenega življenja. Izvirala je iz mogočnega aristokratskega rodu. V tem okolju je bila deležna vrhunske humanistične izobrazbe, vse življenje se je gibala v različnih eminentnih kulturnih krogih na italijanskem ozemlju, v katerih je igrala zelo dejavno in pomembno vlogo: skratka, bila je izjemna intelektualka v specifičnem okolju renesančne družbe. Že v mladih letih se je uveljavila kot pesnica, sčasoma pa je postala eno najslavnejših pesniških imen 16. stoletja. Njena poezija, napisana v sonetni formi, se po vsebini deli na dve veliki temi: ljubezen in duhovno življenje, tretja, epistolarna poezija, je minorna.
Vprašanje (dis)kontinuitete med etiko in politiko je civilni živec renesančnega humanizma v historični ontogenezi, ki se začne s Salutatijem, razvija s Ficinom in sklepa z Machiavellijem. Tragično ...sirensko petje človeškega bivanja vseskozi zapeljuje, a nikdar ne preglasi vzgornih upov k praksi usmerjene človeškosti, ki spekulacijo uresničuje skozi dejavnost, kontemplacijo udejanja skozi politiko, sveto izpričuje skozi posvetnost. Humanistična duhovna in filozofska prenova ciceronskega nauka o dobrem delovanju na pragu modernosti nemirno, pa vendar srečno pripelje antropološko vexata quaestio skozi Scilo in Karibdo družbene etike, nihajoče med jajcem in jabolkom (ab ovo usque ad mala) Salutatijevega voluntarističnega optimizma, Ficinovega novoplatonizma in Machiavellijevega antropološkega pesimizma, med zemljo, nebom in breznom. Civilni humanizem še danes budi in bodri vse, ki se v somraku človeškosti še trudijo služiti kvalificiranemu življenju.
As financial turmoil in Europe preoccupies political leaders and global markets, it becomes more important than ever to understand the forces that underpin the European Union, hold it together and ...drive it forward. This timely book provides a gripping account of the realities of power politics among European states and between their leaders. Drawing on long experience working behind the scenes, Luuk van Middelaar captures the dynamics and tensions shaping the European Union from its origins until today.It is a story of unexpected events and twists of fate, bold vision and sheer necessity, told from the perspective of the keyplayers - from de Gaulle to Havel, Thatcher to Merkel. Van Middelaar cuts through the institutional complexity by exploring the unforeseen outcomes of decisive moments and focusing on the quest for public legitimacy.As a first-hand witness to the day-to-day actions and decisions of Europe's leaders, the author provides a vivid narrative of the crises and compromises that united a continent. By revisiting the past, he sheds fresh light on the present state of European unification and offers insights into what the future may hold.
V prispevku bodo predstavljene nekatere etične razsežnosti trenutne pandemije na eni in izstopajoče etične dileme ter izzivi, pred katerimi stoji človeštvo, na drugi strani. Ker v primeru pandemije ...narava (virus) primarno spodkopava ustaljene kulturne vzorce, to od nas terja ponoven kritični premislek fenomena kulture v njegovem razmerju do narave in življenja. Zato bo posebne pozornosti deležen klasični antropološki binom narava – kultura in tisti pojmi, ki opisujejo njegov etični značaj (kriza, telo, vrednote, pravice in svoboščine, morala, etika, svoboda, posameznik, družba).
There has been an enormous increase in interest in the use of evidence for public policymaking, but the vast majority of work on the subject has failed to engage with the political nature of decision ...making and how this influences the ways in which evidence will be used (or misused) within political areas. This book provides new insights into the nature of political bias with regards to evidence and critically considers what an ‘improved’ use of evidence would look like from a policymaking perspective. Part I describes the great potential for evidence to help achieve social goals, as well as the challenges raised by the political nature of policymaking. It explores the concern of evidence advocates that political interests drive the misuse or manipulation of evidence, as well as counter-concerns of critical policy scholars about how appeals to ‘evidence-based policy’ can depoliticise political debates. Both concerns reflect forms of bias – the first representing technical bias, whereby evidence use violates principles of scientific best practice, and the second representing issue bias in how appeals to evidence can shift political debates to particular questions or marginalise policy-relevant social concerns. Part II then draws on the fields of policy studies and cognitive psychology to understand the origins and mechanisms of both forms of bias in relation to political interests and values. It illustrates how such biases are not only common, but can be much more predictable once we recognise their origins and manifestations in policy arenas. Finally, Part III discusses ways to move forward for those seeking to improve the use of evidence in public policymaking. It explores what constitutes ‘good evidence for policy’, as well as the ‘good use of evidence’ within policy processes, and considers how to build evidence-advisory institutions that embed key principles of both scientific good practice and democratic representation. Taken as a whole, the approach promoted is termed the ‘good governance of evidence’ – a concept that represents the use of rigorous, systematic and technically valid pieces of evidence within decision-making processes that are representative of, and accountable to, populations served.
This article presents the image of Croatia in the autobiographical works and memoirs of Janez Trdina-more precisely, the image, morality, and character of the Croats, both men and women, their life ...and clothing, the life of Croatian farmers from the central parts of Croatia, the Croatian clergy, life in Croatia under the Bach's absolutism and after its fall, the images of Varaždin, Rijeka, and other Croatian cities, and a view of the Rijeka reading room.
Prispevek metodološko izhaja iz socialne zgodovine umetnosti. Uvodoma je predstavljena tipologija grafitov in likovne ulične umetnosti s poudarkom na dihotomiji jezikovnega in likovnega načina ...uličnega izražanja. Pri dosedanjem pojasnjevanju razlike med grafiti in likovno ulično umetnostjo je v strokovnih in drugih krogih pretežno uporabljena deskriptivna metoda. Splošno razumevanje je, da je druga oblika vizualna nadgradnja prve, pri razčlenjevanju po fizičnih lastnostih, vsebini in obliki pa je veliko prekrivanja, ker sta morfološka sloga obeh podobna. Prispevek interpretativno pojasnjuje razliko med njima, in sicer z vpletenostjo v družbena razmerja, na podlagi tradicionalnega razlikovanja dveh tipov menjave – darovanja in trgovine. Analiza izhaja iz teorije družbenega življenja stvari Arjuna Appaduraija. Različne razvojne stopnje grafitov so klasificirane po kategorijah različnih vrst blaga in strnjene v kratko kulturno biografijo po modelu Igorja Kopytoffa.
Against the backdrop of ever-increasing nationalist violence during the last decade of the twentieth century, this book challenges standard analyses of nation formation by elaborating on the nation's ...dream-like hold over the modern social imagination. Stathis Gourgouris argues that the national fantasy lies at the core of the Enlightenment imaginary, embodying its central paradox: the intertwining of anthropological universality with the primacy of a cultural ideal.Crucial to the operation of this paradox and fundamental in its ambiguity is the figure of Greece, the universal alibi and cultural predicate behind national-cultural consolidation throughout colonialist Europe. The largely unpredictable institution of a modern Greek nation in 1830 undoes the interweaving of Enlightenment and Philhellenism, whose centrifugal strands continue to unravel the certainty of European history, down to the internal predicaments of the European Union or the tragedy of the Balkan conflicts.This 25th Anniversary edition of the book includes a new preface by the author in which he situates the book's original insights in retrospect against the newer developments in the social and political conditions of a now globalized world: the neocolonial resurgence of nationalism and racism, the failure of social democratic institutions, the crisis of sovereignty and citizenship, and the brutal conditions of stateless peoples.
Cilj rada bio je dobiti uvid u neovisno življenje osoba s invaliditetom. Željela se ispitati povezanost samostalnog funkcioniranja, kvalitete života, prostorne pristupačnosti i nekih aspekata ...neovisnog življenja promatranog kroz stupanj samostalnosti u obavljanju svakodnevnih obiteljskih i kućanskih aktivnosti i učestalost obavljanja takvih aktivnosti. Istraživanje je provedeno na uzorku od 400 ispitanika u gradu Zagrebu s obzirom na njihovu prevalenciju u populaciji glede oštećenja. Podaci su prikupljeni standardiziranim upitnicima koji su se odnosili na spomenuta područja promatranja: skala kvalitete života, skala uključenosti u zajednicu, skala samostalnog funkcioniranja osoba s invaliditetom te skala zadovoljstva životom i upitnik koji se odnosio na socio demografska obilježja ispitanika. Rezultati su pokazali da postoji povezanost između neovisnog življenja promatranog kroz aspekte stupnja samostalnosti i učestalosti obavljanja aktivnosti u obitelji i prostorne pristupačnosti, kvalitete života i svakodnevnog funkcioniranja. Regresijskom analizom je utvrđeno da tek u maloj mjeri ovi elementi određuju sam koncept neovisnog življenja promatran kao stupanj samostalnosti i učestalost obavljanja određenih aktivnosti u kućanstvu i obitelji i da je kao takav povezan s samostalnim funkcioniranjem, kvalitetom života, zadovoljstvom životom, prostornom pristupačnošću, samostalnim kretanjem, neovisnim donošenjem odluka. Rezultati istraživanja upućuju na složenost koncepta neovisnog življenja te na daljnja istraživanja ovog konstrukta uzimajući u obzir spoznaje dobivene u ovom istraživanju.
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