Today, we all have been taught that cultural competence is a valuable tool in providing patient-centered care. However, this concept was not considered a standard of oncology nursing practice when ...the Oncology Nursing Society (ONS) began. It was not regarded as a critical component of patient safety, satisfaction, or quality care. In fact, in the 1970s, the importance of providing culturally competent care was virtually nonexistent in our nation's government policies, regulatory standards, academic curriculum, or professional practice. .
Family caregivers need adequate support from healthcare professionals to complete the demands associated with caregiving with minimal impact on their own health and well-being. An optimal balance of ...provision of care between family and support services has not been achieved; therefore, this literature review investigates how family caregivers endure and cope with the challenges of caring for an adult relative with cancer. This review considered the characteristics of caregivers and their functioning, the external and internal supports that help them cope, the ongoing challenges as they journey along the caregiving trajectory, the personal costs of caregiving, and how caregivers cope with supporting their family members through to the end of their journeys. The literature provides an abundance of research on the numerous challenges encountered by families living with cancer; however, little research has been conducted on the coping strategies used by family caregivers at specific stages along the illness trajectory that either optimize or hinder personal recovery. Even less information is available on interventions nurses can introduce to ease the caregiving burden. Improving nurses' understanding of the stressors and unmet needs associated with caregiving is fundamental to the development of effective family-focused clinical interventions.
Estudo descritivo, desenvolvido junto a seis mães de crianças com leucemia, internadas em um hospital especializado, com o objetivo de conhecer quem são as crianças atendidas no serviço e identificar ...como as mães percebem a experiência de cuidar no domicílio e como elas avaliam as orientações recebidas para este cuidado. Os resultados revelaram que apesar das dúvidas, dificuldades e conflitos no interior da família, as mães cuidam com desvelo e se sentem bem em poder fazer isto, e buscam na religiosidade forças para enfrentar a situação. Observou-se ainda que elas sentem necessidade de maior interação com a equipe de enfermagem e que não se sentem à vontade para expressar expectativas ou questionamentos, mesmo quando não compreendem as orientações, revelando a existência de lacunas no âmbito da função educativa-assistencial dos profissionais enfermeiros, como subsídio para atuação da mãe/cuidadora no contexto domiciliar.
This is a descriptive study carried out with six mothers of children suffering from leukemia admitted to a specialized hospital. The objective of the study was to find out who the children being treated in this service are and to identify how mothers perceive the experience of caring for their child at home and how they evaluate the orientation they receive for this type of care. The results revealed that, in spite of doubts, difficulties and conflicts within the family, mothers care for their children with selflessness and feel positive about doing so, resorting to religion to get strength to face the situation. It was also observed that mothers feel a need for further interaction with the nursing staff, but do not feel at ease to express their expectations and questions, even at times when they do not understand the orientations. This is an indication of serious gaps regarding the nursing professional's function of providing assistance and educational support to the mother/caregiver within the family context.
Se trata de un estudio descriptivo, desarrollado con seis madres de niños con leucemia, internadas en un hospital especializado, con el objetivo de conocer quiénes son los niños atendidos en el servicio e identificar cómo perciben las madres la experiencia de cuidar en el domicilio y cómo evalúan las orientaciones recibidas para este cuidado. Los resultados revelaron que a pesar de las dudas, dificultades y conflictos en el interior de la familia, las madres cuidan con desvelo y se sienten bien de poder hacer esto, y buscan en la religiosidad fuerzas para enfrentar la situación. Además se observó que ellas sienten necesidad de más interacción con el equipo de enfermería y que no se sienten cómodas para expresar expectativas o cuestionamientos, aun cuando no comprenden las orientaciones, revelando la existencia de lagunas en el ámbito de la función educativa-asistencial de los profesionales enfermeros, como subsidio para la actuación de la madre/cuidadora en el contexto domiciliario.
Nurse caring has been linked to many clinical outcomes, including patient satisfaction, well-being, and healing. In addition, it is valued by nursing staff and viewed as being essential to clinical ...practice.
The purpose of this program evaluation study was to determine the difference in patient satisfaction with overall nursing care and perceived nurse caring when a nursing staff standard of care protocol, which included caring activities, was implemented within a nursing department at a National Cancer Institute-designated comprehensive cancer center.
A pre-experimental pre-/post-test design with comparison group and a post-test-only design were used to test the effect of the caring protocol on patient satisfaction with nursing care and perceived nurse caring. The study was conducted on seven inpatient units.
Patient satisfaction with nursing care increased for some items, and perceived nurse caring was ranked highly immediately before discharge. Additional program evaluation studies involving a modified caring protocol may improve satisfaction with nursing care in other settings.
OBJETIVO: Foi realizada uma revisão integrativa da literatura com o objetivo de avaliar as evidências disponíveis na literatura o conhecimento científico produzido relacionado à qualidade de vida ...(QV) do paciente adulto com câncer de cólon e reto. MÉTODOS: Selecionamos artigos publicados nas bases de dados LILACS, CINAHL e MEDLINE, entre 1997 e 2007. RESULTADOS: Encontramos que o diagnóstico e o tratamento para o câncer afetam vários domínios da QV do paciente e que fatores como a prática de exercícios, aumento da aptidão física, o estado de boa nutrição, a presença de suporte psicossocial e de rede social favorecem uma QV melhor. CONCLUSÃO: Como lacunas no conhecimento, detectamos falta de produção científica nacional, escassa contribuição do enfermeiro, predomínio de estudos descritivos, de nível de evidência considerado fraco. Sugerimos a atuação do enfermeiro em pesquisas de intervenções de suporte psicossocial e de programas de atividade física que possibilitem melhorar a QV do paciente oncológico.
Are today's nurses ready for the challenge of leading healthcare reform based on best practices and current evidence, ensuring safety and quality in all aspects of care, integrating principles of ...patient-centered care, and leading interprofessional teams while being fiscally responsible, ethical, caring, and compassionate caregivers? Although the question is complicated and multifaceted, the importance of ongoing leadership development from professional entry education to professional practice and enhancing professional practice at the bedside or in the board room must not be overlooked. Initial leadership development and ongoing education about the many dimensions of healthcare innovations are critical to providing nurses with the tools essential to fully engage in an interprofessional approach to healthcare reform (Institute of Medicine IOM, 2010).
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