Scholars have observed a gap between users’ stated preferences to protect their privacy and their actual behavior. This is the privacy paradox. This article queries the persistence of the privacy ...paradox after death. A survey of a representative sample of Israeli Internet users inquired of perceptions, preferences, and actions taken by users regarding their digital remains. The analysis yielded three distinct groups: (1) users interested in preserving privacy posthumously but do not act accordingly; for these users, the privacy paradox persists posthumously; (2) users who match their behavior to their preferences; for these users, the privacy paradox is resolved; and (3) users interested in sharing their personal data posthumously but do not make the appropriate provisions. This scenario is the inverted privacy paradox. This new category has yet to be addressed in the literature. We present some explanations for the persistence of the posthumous privacy paradox and for the inverted privacy paradox.
The digitization of social interactions and daily activities means that multiple aspects of our daily lives are documented and stored, and social interactions leave digital traces. The accumulated ...data do not evaporate upon death, and questions about posthumous privacy and impression management arise. Drawing on eight focus groups comprised of Israeli Internet users from various backgrounds, the article points to the perceived interrelation between posthumous impression management and respect toward the dead and identifies a pervasive normative stance that advocates for the continuation of privacy management from life to after death. We call it the continuity principle. The living users position their personal data across two axes of public–private and in life–after death and manage access to their data accordingly. The findings suggest that given a digital footprint and possibilities to access digital remains, the separation between life and death erodes. However, users opine that in-life norms should linger and survive death.
The personal legacy created throughout a person’s lifetime is increasingly dependent on the lifespan and reliability of computers and electronic data storage. This runs the risk that personal ...legacies stored electronically and often at web addresses unknown to successors may be less complete compared to legacies from the era of analogue data carriers. Dozens of online services have been launched over the past decade to address this problem, but many of them have been discontinued or are not reliable enough to entrust with important data. This article offers a critical review of already existing research on digital legacy preservation and an overview of the available tools and resources to demonstrate that libraries do not yet play an active role in preserving digital legacies, despite the fact that this could not only enhance the sustainability and reliability of preservation, but also be a marketable library service. With this article, the authors would like to draw attention to this service, which is still considered atypical today; provide an objective description of the current situation; and propose a preliminary model for developing such a service in order to set the stage for future research.
Abstract
Death has become increasingly visible on social networks, especially after COVID-19, and Facebook addresses that with double standards: while some profiles remain active, others turn into ...memorials. This article investigates how Facebook’s system deals with dead users’ profiles either to support or restrict interactions concerning users’ deaths. Our qualitative analysis of data from 54 public profiles of people who died between June 2020 and March 2021 showed that (i) Facebook fails to communicate the criteria for transforming profiles into memorials; (ii) no information about their contacts of deceased users’ profiles is given; (iii) the frequency of interaction with memorials and with active profiles is different; (iv) profiles’ privacy settings shape interaction. Our results exemplify how a sociotechnical system influences people’s interactions with dead users’ profiles. We herein highlight implications for interaction design and evaluation, besides the need to consider interaction as existence, which raises big challenges to the Human Computer Interaction (HCI) community.
This article presents the current state of the art regarding digital archiving for archaeology in Cyprus. The analysis of the current European situation shows that various countries have reached ...diverse levels of digitisation concerning archaeology and have different ways of dealing with digital archiving. These differences depend on several factors, such as the presence or lack of expertise, information regarding the procedure, and availability of funding, as well as the history of archaeology of the country. The current contribution analyses the Cypriot state of the art of digital archiving for archaeology in the broader context of the digital transformation era, which drives all major changes and strategies in various sectors of society at both national and international level. This article describes the archaeological background of Cyprus, its peculiarity and challenges and how these elements shape the digital management of the field. The article also presents the main actors involved in archival digitisation and the most relevant digital archaeological repositories, underlining innovative approaches and current gaps. Finally, it addresses the future directions of digital archiving for archaeology in Cyprus.
Background:
Digital legacy refers to the online content available about someone following their death. This may include social media profiles, photos, blogs or gaming profiles. Some patients may find ...it comforting that their digital content remains online, and those bereaved may view it as a way to continue bonds with the deceased person. Despite its growing relevance, there is limited evidence worldwide around the experiences of palliative care professionals in supporting patients to manage their digital legacy.
Aim:
To identify palliative care healthcare professionals’ experiences of supporting patients receiving palliative care in managing digital legacy as part of advance care planning discussions.
Design:
A constructivist grounded theory approach was used to understand healthcare professionals’ experiences of managing digital legacy. Semi-structured interviews were carried out.
Setting and participants:
Participants were 10 palliative care healthcare professionals from across the multidisciplinary team working in a hospice in the North-West of England.
Results:
Four theoretical categories were found to revolve around an emergent theory ‘understanding the impact of digital legacy’ which describe the experiences of palliative care healthcare professionals managing digital legacy as part of advance care planning. These were ‘accessing digital legacy’; ‘becoming part of advance care planning’; ‘impacting grief and bereavement’; and ‘raising awareness of digital legacy’.
Conclusions:
The emerging theory ‘understanding the impact of digital legacy’ offers insight into the knowledge and experiences of healthcare professionals working in a palliative care setting. Digital assets were viewed as being equally as important as physical assets and should be considered as part of advance care planning conversations.
Death cafe in the Welsh valleys-an appraisal Parry, Maria; Taubert, Mark; Clements, Sam ...
International journal of palliative nursing,
06/2021, Volume:
27, Issue:
4
Journal Article
Peer reviewed
A death cafe is an event where people drink, eat and discuss death. Death cafes do not follow a set structure and the events are held for free. The mission of death cafes is 'to increase awareness of ...death with a view to helping people make the most of their (finite) lives'. Death cafes have a proven track record in providing a safe place for people to have conversations about dying, death and grief.
This study aims to contribute to the literature by providing a simple synthesis of comments made on the day of a death cafe in Wales by the attendees, and to allow the identification of further research questions.
A death cafe event was organised in the South Wales valleys, to encourage discussions about death during Dying Matters Awareness week in the UK, 10 May to 16 May 2019.
The event was well attended, and attendees recorded their thoughts about the event.
Emerging themes were categorised into the following themes: communication, digital legacy, stigma, humour and a request for future events. Feedback showed that the death cafe had encouraged a greater dialogue about death and dying and facilitated conversations.
Background:
Motor neurone disease is a progressive neurodegenerative disease without cure. Little is known about how young people are affected when a family member has the illness and subsequently ...dies, resulting in a gap in understanding of how best to support them. One psychotherapeutic approach involves creating a legacy to pass onto the young person, but little research has investigated the use of an emerging format, digital legacies, where videos document a person’s life, memories and achievements.
Aim:
To investigate the views, perceptions and experiences of digital legacies with people affected by motor neurone disease.
Design:
A qualitative study underpinned by interpretative phenomenological analysis.
Setting/participants:
People living with motor neurone disease (n = 4) and bereaved young people (n = 3) in the United Kingdom. Open-ended interviews were conducted in person. Ethical approval was granted by a University ethics committee.
Results:
Five key themes emerged exemplifying mutual challenges and benefits for people with motor neurone disease and bereaved young people. Creating a digital legacy provides a sense of purpose for people with motor neurone disease and a way to convey personality and life experiences. Bereaved young people can modify disease-related memories of the person and gain comfort from hearing and seeing videos.
Conclusion:
This study expands the existing continuing bonds model of grief to include an ‘autobiographical chapter’, creating ‘The Model of Reciprocal Bonds Formation’.
Open‐access data associated with research efforts depend upon managing, packaging, and preserving data for sharing with collaborators and the public. The U.S. Long‐Term Ecological Research (LTER) ...Network, established in 1980, provides an early example of embedded data management supporting long‐term, place‐based research and contributes to our understanding of the enactment of open data access within scientific research arenas. Here, we examine collective data activities enabled by embedding data management within the Shortgrass Steppe (SGS) research site. Study of the SGS LTER, a member of the U.S. LTER Network for more than three decades, provided a unique opportunity to investigate data management practices and challenges during the life cycle of a long‐term project. It illustrates how a continuous, uninterrupted focus on data management positioned in dynamic interaction with researchers at a site as well as with an active network‐wide data management committee can stimulate the growth of both data expertise and data infrastructure. We report on an ethnographic study by a collaborative team of researchers, all having been involved with the LTER network and well‐positioned for investigating data management challenges faced during the periods of activation, maturation, and decommissioning of a project at a research site. Termination of the SGS site's membership in the U.S. LTER Network prompted rethinking about long‐term data management. During the decommissioning phase, we document how views on temporality and data management strategies shift from planning for a longitudinal, ongoing site to wrapping up a long‐term project. Striving to ensure “long live the data” at the end, novel data arrangements, such as development of a digital legacy project collection, contribute to data stewardship. Lastly, from this study of a long‐term research site, we offer five recommendations about data management and describe strategies pertinent to planning for data management and open access for other research projects.
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