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Challenges in establishing optimal pediatric palliative care at the university hospital in Slovenia [Elektronski vir]Meglič, Jakob, dr. med. ...The integration of pediatric palliative care (PPC) should become a standard of care for all children with life-limiting and life-threatening illnesses. There are many barriers and misperceptions in ... pediatrics which hinder the early implementation of PPC. The aim of the study was to design starting points for the establishment of accessible PPC with early involvement of patients in a tertiary-level children’s hospital. An intervention, presentation, and discussion on PPC were ofered by the hospital PPC team to all employees in the hospital. A total of 237 participants (physicians 30.4%, nurses 49.4%, psychologists 8.4%, and others) completed a questionnaire before and after the intervention. The personnel’s knowledge, self-assessment of their ability to perform PPC, attitude to participate in PPC, and their awareness and understanding of the need for PPC were evaluated. The results were analyzed using Pandas and SciPy libraries in Python. The knowledge, awareness, and attitude of the physicians, nurses, and other professionals improved signifcantly after the intervention. However, the self-assessment of their ability to perform PPC did not increase. Previous experience with the death of a patient has proven to be a stimulus for self-initiative in acquiring knowledge in PPC and was linked with a better attitude and higher awareness of the need for PPC. Conclusions: More education and practical work tailored to the diferent professional profles are needed, with adjustments for specifc subspecialist areas, especially where patients could be included in early PPC. Although additional studies are needed, we identifed the main directions for the further implementation of PPC in clinical practice in our setting.Vir: European journal of pediatrics [Elektronski vir]. - ISSN 1432-1076 (Vol. 182, iss. , 2023, str. 1393-1401)Vrsta gradiva - e-članekLeto - 2023Jezik - angleškiCOBISS.SI-ID - 147594755
Avtor
Meglič, Jakob, dr. med. |
Lisec, Ajda |
Lepej, Dušanka |
Loboda, Tanja, dr. med. |
Bertok, Sara, 1976- |
Lešnik Musek, Petra |
Kreft, Ivana |
Oštir, Majda |
Ponjević, Tehvida |
Meglič, Anamarija
Teme
pediatric palliative care |
implementation |
life-limiting disease |
life-threatening condition |
quality of children’s life |
paliativna oskrba v pediatriji |
implementacija |
življenjsko umejujoča bolezen |
življenje ogružojoče stanje |
kvaliteta življenja otrok
Vnos na polico
Trajna povezava
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JCR | SNIP | JCR | SNIP | JCR | SNIP | JCR | SNIP |
Baze podatkov, v katerih je revija indeksirana
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Povezave do osebnih bibliografij avtorjev | Povezave do podatkov o raziskovalcih v sistemu SICRIS |
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Meglič, Jakob, dr. med. | |
Lisec, Ajda | |
Lepej, Dušanka | 38288 |
Loboda, Tanja, dr. med. | |
Bertok, Sara, 1976- | 35553 |
Lešnik Musek, Petra | 18863 |
Kreft, Ivana | 28516 |
Oštir, Majda | |
Ponjević, Tehvida | |
Meglič, Anamarija | 14276 |
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