The new IPBES work programme “assessment of transformative change” aims to identify factors in human society—behavioural, social, cultural dimensions, among others—that may be leveraged to bring ...about transformative change. In this context and based on its scientific recommendations, the third French National Strategy for Biodiversity for 2030 (SNB3), published in 2022, aims to contribute to the implementation of France’s international commitments under the Convention on Biological Diversity and the EU’s Biodiversity Strategy for 2030. We carried out a critical assessment of the capacity of the first version of SNB3 to initiate transformative change. Firstly, we describe a two-step assessment methodology for determining the leverage potential of the strategy’s measures, based on a robust and replicable independent scientific audit and a multi-criteria analysis. Secondly, we present the main results of the assessment using the SNB3 as a case example. We confirm the scientific and practical relevance of this type of exercise for policy makers, for establishing strategies that are part of a transition process allowing for real transformative change in society. By analysing the measures and ranking them from most to least efficient, this study reveals the strengths and weaknesses of the strategy by anticipating what should have and may not have an impact, while highlighting what needs to be improved as a priority.
The aim of this study is to assess the implementation of the principles of the Association Agreement between Ukraine and the European Union (hereinafter - the Agreement) in Ukraine in the field of ...civil society development, in particular in the implementation of the National Strategy for Civil Society Development for 2016-2020 (hereinafter - the National Strategy - 2020). A comparative analysis of ensuring in Ukraine the principles of stability and effectiveness of democratic institutions, rule of law, respect for human rights and fundamental freedoms, as agreed by the Parties to the agreement in the field of domestic policy. The analysis revealed certain deviations from the provision of these democratic principles. Requirements for the content of the new National Strategy, which is being formed for 2021-2026 (hereinafter - the National Strategy - 2026) by joint efforts of the Ukrainian government and civil society organizations (CSOs) have been formulated. Based on the study, specific recommendations were made on the implementation of the principles of the Agreement in the draft of the new National Strategy - 2026 and on the further development of civil society in Ukraine.
Primary CNS tumors are the leading cause of cancer-related death in pediatrics. It is essential to understand treatment trends to interpret national survival data. In Canada, children with CNS tumors ...are treated at one of 16 tertiary care centers. We surveyed pediatric neuro-oncologists to create a national standard of practice to be used in the absence of a clinical trial for seven of the most prevalent brain tumors in children. This allowed description of practice across the country, along with a consensus. This had a multitude of benefits, including understanding practice patterns, allowing for a basis to compare in future research and informing Health Canada of the current management of patients. This also allows all children in Canada to receive equivalent care, regardless of location.
This case report is a reflective narrative, documenting the methods used to develop a policy framework for a National Strategy on Climate, Health and Well-being for Australia. The report aims to ...guide advocates, communities of practice, and governments in developing a comprehensive policy response to climate change and its health impacts.
The aim of this study is to assess the implementation of the principles of the Association Agreement between Ukraine and the European Union (hereinafter - the Agreement) in Ukraine in the field of ...civil society development, in particular in the implementation of the National Strategy for Civil Society Development for 2016-2020 (hereinafter - the National Strategy - 2020). A comparative analysis of ensuring in Ukraine the principles of stability and effectiveness of democratic institutions, rule of law, respect for human rights and fundamental freedoms, as agreed by the Parties to the agreement in the field of domestic policy. The analysis revealed certain deviations from the provision of these democratic principles. Requirements for the content of the new National Strategy, which is being formed for 2021-2026 (hereinafter - the National Strategy - 2026) by joint efforts of the Ukrainian government and civil society organizations (CSOs) have been formulated. Based on the study, specific recommendations were made on the implementation of the principles of the Agreement in the draft of the new National Strategy - 2026 and on the further development of civil society in Ukraine.
Monograph review submitted “Methodological foundations for strategizing of socio-economic development of Uzbekistan”, in which, based on the example of Uzbekistan, a full-fledged study of the theory ...and practice of strategizing is carried out, and the expediency of applying the methodology of strategizing of academician V. L. Kvint in the development of long-term national strategies aimed at socio-economic development.
Abstract
Background
Rare disease registries (RDRs) facilitate monitoring of rare diseases by pooling small datasets to increase clinical and epidemiological knowledge of rare diseases and promote ...patient centred best practice. The aim of this study was to understand the current state of RDRs in Australia, data captured, impact on patient outcomes, funding models, and barriers and enablers regarding their establishment and maintenance.
Methods
An exploratory sequential mixed methods study design was adopted. First, a list of Australian RDRs, primary contacts and data custodians was generated through online and consumer group (Rare Voices Australia (RVA)) contacts. A cross-sectional, anonymous online survey was distributed to registry custodians, managers, or principal investigators of 74 identified Australian RDRs, 88 RVA Partners, 17 pharmaceutical organizations and 12 RVA Scientific and Medical Advisory Committee members. Next, managers and coordinators of RDRs and databases who participated in the survey were invited to participate in semi-structured interviews. Quantitative and qualitative data were analysed using basic descriptive statistics and content analysis, respectively.
Results
Forty RDRs responded to the survey; nine were national, five were based in Australia and New Zealand, and the remaining were global. Of the 40 survey respondents, eight were interviewed. Most of the RDRs captured similar information regarding patient characteristics, comorbidities and clinical features, diagnosis, family history, genetic testing, procedures or treatment types, response to treatments and complications of treatments. Better treatment outcomes, changes in process of care and changes in quality of care were the most frequently reported benefits of the RDRs. The main challenges proved to be cost/funding of data collection, data completeness, and patient consent. When asked, the participants identified opportunities and challenges regarding potential options to streamline RDRs in Australia in the future.
Conclusion
Findings from this study highlighted significant dataset heterogeneity based on the individual disease, and current lack of interoperability and coordination between different existing RDRs in Australia. Nevertheless, a nationally coordinated approach to RDRs should be investigated given the particular benefits RDRs offer, such as access to research and the monitoring of new disease-modifying treatments.
Rural and peripheral areas, however, defined, suffer from accessibility and mobility problems that challenge their liveability and potential for development. To cope with these challenges, it is ...necessary to acknowledge and address the spatial, societal, cultural and economic components of accessibility, with comprehensive action involving actors from various sectors at different scales. The Italian National Strategy for Inner Areas, aimed to reverse marginalization processes of rural peripheral areas with a place-based approach, is moving in this direction. This article analyses and discusses how the strategy aims to address accessibility and mobility, in principle and in practice. To this aim, document analysis of the general documents and guidelines of the SNAI and 50 local strategies is combined with qualitative insights from interviews and participant observation. The analysis shows the scope and approach of the strategy and points out a number of criticalities and pitfalls challenging its potential. The results can contribute to inform research, policymaking and planning to improve accessibility in European peripheral areas, taking stock of the potentialities and limitations of this experience.
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