Ali smo pripravljeni za vpogled v lastne gene? Moralne in etične dileme# = Are we ready for indight [sic] into own genes? Moral and ethical dilemmas
Božič, Borut, 1959-
Vse večja dostopnost analize celotnega genoma / eksona odpira paleto etičnih vprašanj, ki se navezujejo na temeljne človekove pravice in svoboščine. V sestavku so obravnavane poleg osnovnih ...metodoloških pristopov v bioetiki specifične razlike na širšem področju genetskih analiz med klinično prakso in raziskovalno študijo z vidika zavestnega pristanka, obravnave genetskih podatkov, izročanja ali zadržanja informacij, interesov in pravic tretjih oseb ter vprašanja obravnave neiskanih ugotovitev. Obravnavani so nekateri pravni vidiki regulacije in razlike v pristopih med ZDA in Evropo. Povečana količina informacij na področju genetike in povečana dostopnost do genetskih informacij zagotovo vplivata tudi na spreminjanje odnosa posameznika in širše skupnosti do vprašanj tveganj in dobrobiti, povezanih z genetskimi informacijami. Zato so razprave glede etičnih, pravnih in socialnih vprašanj ne samo smiselne, ampak nujne.
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