To explore patient experiences of intimacy and sexuality in those living with inflammatory bowel disease.
An interpretative phenomenological study guided by van Manen's framework. Thematic analysis ...was conducted through interpretation and reflection on four existential domains: body, relationships, time and space.
Data were collected during 2019-2021 from 43 participants via face-to-face or telephone interviews, as well as anonymous collection of narratives submitted via Google Forms.
Four themes were identified: Sexuality as lived incompleteness was the overarching theme representing the essence of the experiences of intimacy and sexuality. This theme covered the four main themes: Otherness of the body, Interrupted connectedness, Missing out on life fullness and Fragmented openness and each corresponded to an existential domain. Intimacy and sexuality are negatively affected by inflammatory bowel disease, with impact on quality of life. Patients experienced grieving multiple losses, from body image and control, to choice of partners and future opportunities. The four domains were difficult to separate and a close inter-relationship between each domain was acknowledged.
A model was developed to draw new theoretical insights to understanding the relationship between sexual well-being and psycho-emotional distress similar to grief.
First qualitative study to explore intimacy and sexuality experiences of those living with inflammatory bowel disease. Illness impact on sexuality has negative psycho-emotional implications as a result of losing the old self and capacity to have the desired relationships/sex life. A theoretical model was developed in an attempt to illustrate the close relationship of intimacy, sexuality and psycho-emotional well-being.
Patients were involved in the study design.
Background:
Autism spectrum disorder (ASD) can impact the individual and their families. The impact on siblings is unique because they evolve from being another child in the family to a future adult ...who can be a potential resource to the family in supporting a member with ASD. Since the quality of care and support can be affected by the lived experiences of the carer and there are not many studies on siblings, this study examined the lived experiences of siblings of individuals with ASD.
Methods:
Fourteen siblings of individuals with ASD, aged 15–36 years, were recruited from a tertiary hospital, schools, and private institutes. A semistructured interview schedule was used to explore the lived experiences. Interpretative phenomenological analysis (IPA) was used to identify the themes.
Results:
The themes based on IPA indicated that the siblings have very basic concerns like understanding the condition and complex issues such as coping, preparing for current and future roles, personal needs and expectations, need for a support system, and positive aspects of the sibling relationship. Nonetheless, the siblings minimized reporting their difficulties and focused more on the needs of the sibling with ASD.
Conclusion:
Siblings have diverse lived experiences, with a small element of positive experiences. Appropriate supports are needed to address the complexities of the lived experiences.
Food Enthusiasts and Tourism Robinson, Richard N. S.; Getz, Donald
Journal of hospitality & tourism research (Washington, D.C.),
06/2016, Volume:
40, Issue:
4
Journal Article
Peer reviewed
Involvement is a much theorized construct in the consumer behavior literature, yet extant food involvement scales have not been developed for leisure- or tourism-based contexts. Adopting a ...phenomenological approach, this article reports a study with two primary aims: to develop a customized food involvement scale and to administer the instrument to a sample of self-declared “food enthusiasts” with analysis focusing on identifying the underlying constructs of food involvement. An exploratory factor analysis finds four dimensions of food involvement: Food-Related Identity, Food Quality, Social Bonding, and Food Consciousness. The four dimensions are validated by discriminant analysis between the food enthusiast sample and a general population sample and logistic regression reveals that identity is the most powerful predictor of being a food enthusiast. We demonstrate the utility of the four factors by operationalizing them as variables in tests of difference vis-à-vis demographic variables and conclude the study by summarizing the theoretical and tourism destination implications. This research addresses a need for theory-driven knowledge to inform the burgeoning special interest tourism of food tourism.
This scoping review investigates rigour from phenomenological and phenomenographic orientations and their appropriate fit into the discourses identified by researchers. The scoping review addresses ...the following central research question: Do phenomenological and phenomenographic studies in published library science research share the same criteria of rigour? Library and information science (LIS) multi-disciplinary bibliographic databases were searched. Basic keyword searching was conducted in databases and conference proceedings were hand-searched to ensure that no articles were missed because of indexing lags. The review found that there are 18 explicitly stated phenomenological orientations and six phenomenographic orientations across LIS. Specific frameworks were applied to each method while strategies from positivism were used interchangeably. There must be a balance between generalizability, reliability, and validity, rather than an over-reliance on one of these pillars. Furthermore, LIS researchers must familiarize themselves with different phenomenological and phenomenographic orientations to apply their methodologies appropriately.
•Library science lacks critical appraisal of rigour for phenomenological and phenomenographic methods.•A scoping review investigated if published phenomenological and phenomenographic research share the same rigour.•There is an overlap between rigour used for phenomenological and phenomenographic studies.
•Crack branching is governed by the principal stresses evolution at the crack tip.•Crack speed is limited by the evolution of the principal stress filed at crack tip.•A time scale is introduced in ...the definition of effective rate concept.•An explicit stress-based nonlocal regularization scheme is used.•Realistic and objective simulations of crack branching in concrete are presented.
This contribution presents a numerical study towards the propagation and branching of cracks in quasi-brittle materials, using a new effective rate-dependent damage model, enhanced by a stress-based nonlocal (SBNL) regularization scheme. This phenomenological model is mesh objective and reproduces the major phenomena associated with crack propagation and branching in quasi-brittle materials.
It is discussed and demonstrated that the branching phenomenon is not controlled by a specific, material dependent, crack speed. Instead, it is governed by the evolution of the principal stresses at the crack tip, which are controlled by the evolution of damage. It is demonstrated that, with increasing crack speeds, the principal stresses at the crack tip tend to evolve from a mode-I to a mixed-mode state. Beyond a certain (critical) crack speed, the stress distribution around the crack tip reaches a critical state at which a single crack is no longer stable. When this condition is met, crack branching occurs whenever the stress field at the crack tip is destabilized by either a physical discontinuity or an interfering stress wave reflected at the specimen boundaries.
•Neuraxial anesthesia skills in obstetrics are difficult for trainees to acquire.•There is no consensus regarding best practices for teaching these procedures.•Trainee preferences and attitudes align ...with principles of adult learning theory.•Trainees value a staged approach and independent trouble-shooting.•Trainees appreciate focused feedback and a calm instructor.
Learning to perform neuraxial techniques in obstetrics is considered one of the most difficult skills for anesthesiology trainees to acquire and no consensus exists regarding the best practices for teaching these procedures. Utilizing a qualitative, phenomenological approach, we aimed to explore what trainees perceive as the best approaches to teaching epidural anesthesia techniques; identify how these perceptions align or differ from those of faculty anesthesiologists; and examine how these approaches fit into the cognitive apprenticeship framework, which describes a process of reflection on how learning occurs in the authentic environment.
Semi-scripted interviews were conducted with 10 residents and three faculty members from the division of obstetric anesthesiology at an academic center. Interviews were transcribed, de-identified, fragmented, and coded. A thematic analysis was conducted, and codes re-organized into the cognitive apprenticeship framework of (1) content, (2) method (including subcategories modeling, coaching, scaffolding, articulation, reflection, and exploration), (3) sequence, and (4) sociology (including situated learning and culture of expert practice).
Trainees valued a staged approach to learning epidural techniques, independent trouble-shooting, graded independence, focused feedback, and a calm instructor. The challenges of learning and teaching epidural techniques identified by trainees and instructors included the tactile nature of the procedure, teaching on awake, non-sedated patients, limited teaching time, and creating an environment of psychological safety.
Trainee and instructor preferences for teaching epidural procedures in obstetrics aligned with the cognitive apprenticeship framework. These concepts may be applied to curriculum design, evaluation, feedback, self-assessment and faculty development.
Being able to describe how research findings become evidence is crucial in providing a justification for all kinds of research findings. However, qualitative researchers in health care, including ...those who conduct phenomenological research, are usually fairly modest when it comes qualifying their research findings as such. We advocate a view of evidence for phenomenological research, an approach that is rooted in philosophy of science, including perspectives of ontology, epistemology, and methodology. We suggest that phenomenology can become an exemplar for how qualitative research can make convincing arguments and thus can be better appreciated. In this article, we present a philosophical foundation for phenomenological evidence by exploring the notions of objectivity, validity, and generalizability in terms of openness, meaning, and essence.
Purpose: The purpose of the study was to provide a transgender narrative on healthcare interactions to increase visibility and awareness of transgender-identified issues in accessing care. This study ...aimed to: (a) examine how transgender individuals perceive and experience interactions with trained healthcare professionals, such as nurses, physicians, and mental health professionals, (b) identify common issues related to transgender individuals' barriers to care, and (c) identify how these barriers affect a transgender individual's ability to access health care. Design: A phenomenological approach was used. Methods: The nine transgender-identified participants received a demographic questionnaire followed by a virtual semi-structured interview. Thematic analysis was used to analyze the interview data. Findings: The themes that emerged from the data were (a) challenges with accessing health care, (b) inconsistent healthcare information, and (c) disenfranchised versus empowered experiences. Conclusion: The results of this study not only provided an opportunity for the transgender participants to share their experiences, but also provides educational information for healthcare providers to improve their future interactions with transgender patients. Clinical relevance: Identifying the transgender patient with the correct name and pronoun, providing a welcoming and open healthcare environment, and knowing where to locate transgender health resources will improve the transgender patient's healthcare experience.
Les urgences obstétricales représentent la majorité des causes de décès maternels. Les principales causes de décès maternels et néonatals dans les urgences obstétricales comprennent les saignements, ...l'hypertension induite par la grossesse, le prolapsus du cordon, la dystocie des épaules, la mauvaise progression, le décollement placentaire, le placenta praevia et l'embolie amniotique. Ces événements indésirables liés au travail et à l'accouchement provoquent des situations d'urgence et des traumatismes pour le personnel infirmier concerné. Une conception de recherche phénoménologique qualitative et descriptive a été utilisée pour explorer et décrire les expériences vécues par des sages-femmes avancées concernant la gestion des urgences obstétricales dans les unités obstétricales de sages-femmes (MOU) de la province de Gauteng, en Afrique du Sud. Un guide d'entretien a été préparé avec une question principale suivie de questions d'approfondissement basées sur les réponses des participants. Des entretiens individuels semi-structurés en face-à-face ont été utilisés pour collecter des données auprès de treize (13) sages-femmes avancées qui ont été sélectionnées à dessein et qui travaillaient dans les unités d'obstétrique des sages-femmes depuis deux ans ou plus après avoir obtenu leurs qualifications. Les unités d'obstétrique des sages-femmes ont été sélectionnées sur la base des dossiers de leurs statistiques de naissance. Les sept étapes procédurales de Collaizi ont été utilisées pour l'analyse des données. Des mesures pour assurer la fiabilité de l'étude ont été observées dans le paradigme naturaliste comprenant des critères de crédibilité ; transférabilité; fiabilité; et la confirmabilité. Trois thèmes avec des sous-thèmes ont émergé de la présente étude, à savoir : le stress psychosocial; charge de travail avancée des sages-femmes ; et manque de professionnalisme. En conclusion, il était évident que les sages-femmes avancées subissent un stress psychosocial en raison d'environnements de travail peu propices qui ne disposent pas de ressources suffisantes et des attentes élevées des patients et de leurs familles. La direction doit soutenir les sages-femmes avancées avec les ressources nécessaires qui leur permettront de s'acquitter efficacement de leurs tâches et de minimiser leurs niveaux de stress et de traumatisme. (Afr J Reprod Health 2021; 255: 93-104).
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