Data literacy has been defined as "the ability to read, work with, analyze and argue with data". The United Nations has highlighted a growing risk of inequality for people excluded from the new world ...of data by lack of education, language, poverty, and discrimination and has called for the development of data literacy at all levels of society. Responses to data are shaped by personal, social and cultural influences, as well as by trust in the source. The arts can play an important role in regulating our responses to information and increasing accessibility, engagement and sense-making of data. However, to our knowledge, to date, there has been no comprehensive review of publications on the role of the arts in the context of data literacy. This paper presents a protocol and a methodological framework to perform a scoping review to identify and map the available evidence for the role of the arts in enhancing data literacy. The review aims to provide an overview of research over the past twenty years to develop a clearer understanding of (a) which art forms are represented in the literature (b) which population groups and settings are identified (c) and the rationale for using the arts to enhance data literacy.
This paper explores the proposal that music, and particularly singing, has unique properties that render it amenable to encounters with “the other” or the sacred stranger. Drawing on the ...deconstructionist works of Kristeva and Derrida, as well as the postmodern hermeneutics of Kearney and Caputo, it explores current debate concerning the nature of “the sacred” in contemporary life and the erosion of the theistic/atheistic divide, while proposing a deepening of the debate through the inclusion of the performative. As philosophical and theological discourses embrace this aporia, it does so against the backdrop of unprecedented human migration. The concomitant cultural and social disruption throws up new questions around the nature and experience of religion, spirituality and the sacred. This paper explores these questions in the context of a Congolese choir called Elikya, which was established by a group of asylum seekers in Limerick city, Ireland, in 2001. In tracking the musical life of this choir over the last decade and a half, including two musical recordings and numerous liturgical, religious and secular performances, it suggests that the sonic world of the choir both performs and transcends these descriptors. Using a three-fold model of context, content and intent, the paper concludes that musical experiences such as those created by Elikya erode any easy divisions between the religious and the secular or the liturgical and the non-liturgical and provide sonic opportunities to encounter the sacred stranger in the untidy playground of creative chaos.
Introduction
The aim of this study was to compare glycemic control and body mass index standard deviation score (BMI‐SDS) before and after implementation of intensive insulin therapy using multiple ...daily injection (MDI) or continuous subcutaneous insulin infusion (CSII) in adolescents with type 1 diabetes (T1D) attending a large multidisciplinary paediatric diabetes clinic in Australia.
Methods
Prospective data were collected for cross‐sectional comparison of youth aged 10.0–17.9 years (n = 669) from routine follow‐up visits to the diabetes clinic in 2004, 2010, and 2016. Outcome measures included HbA1c; BMI‐SDS; and insulin regimen.
Results
BMI‐SDS remained stable between 2004 to 2016 in the 10–13 and 14–17 year age group (0.7 vs. 0.5, p = .12 and 0.7 vs. 0.7, p = .93, respectively). BMI‐SDS was not different across HbA1c groups; <53 mmol/mol (7.0%), 53 to <75 mmol/mol (<7.0 to <9.0%) and >75 mmol/mol (>9.0%) in 2004 (p = .873), 2010 (p = .10) or 2016 (p = .630). Mean HbA1c decreased from 2004 to 2016 in the 10–13 year (69 mmol/mol (8.4%) vs. 57 mmol/mol (7.4%), p = <.001) and 14–17 year group (72 mmol/mol (8.7%) vs. 63 mmol/mol (7.9%), p = <.001). Prior to the implementation of MDI and CSII in 2004 only 10% of 10–13 year olds and 8% of 14–17 year olds achieved the international target for glycemic control (HbA1c 53 mmol/mol <7.0%). In 2016, this increased to 31% of 10–13 year olds and 21% of 14–17 year olds.
Conclusions
BMI‐SDS did not increase with the change to intensive insulin therapy despite a doubling in the number of adolescents achieving the recommended glycemic target of <7.0% (53 mmol/mol). HbA1c was not associated with weight gain.
The aim of this study was to compare glycemic control and body mass index standard deviation score (BMI‐SDS) before and after implementation of intensive insulin therapy in adolescents with T1D. Prospective data were collected for cross‐sectional comparison of youth aged 10.0‐17.9 years (n=669) from routine follow‐up visits to the diabetes clinic in 2004, 2010 and 2016. BMI‐SDS did not increase with the change to intensive insulin therapy despite a doubling in the number of adolescents achieving the recommended glycemic target of 7.0% (53mmol/mol).
There is increasing recognition that people's lived experience needs to be incorporated into health decision-making. This has led to rising imperatives for involving the public in health processes, ...including research. While there have been significant advances in the field, patterns of exclusion still exist in some areas, including migrant participation in health research. Migration and mobility create challenges around social inclusion and this extends to social and cultural practices used in research. There is an emerging body of literature about improving meaningful, participatory spaces for migrants' involvement in health research using creative tools and techniques that are attuned to cultural diversity. These include the use of arts-based research methods. There is strong evidence for the use of music, particularly singing, as an effective arts-based participatory tool
The goal of this scoping review is to investigate the evidence for the use of music as an arts-based method in migrant health research. Developed by an interdisciplinary team specialising in public and patient involvement; nursing and midwifery; primary health care; and the performing arts, it aims to analyse existing evidence across disciplines that are not usually studied together, identify gaps in current knowledge and use these as a foundation to build effective strategies towards increasing access to and knowledge of participatory, arts-based methods using music in migrant health research.
The protocol for this scoping review follows the guidelines and stages set out in the JBI Reviewer's Manual (
2017), and by Levac
, (2010), which build on the methodological framework of Arksey and O'Malley (2005). This incorporates six stages: 1) Identifying the research question; 2) Identifying relevant studies; 3) Study selection; 4) Charting the data; 5) Collating, summarising, and reporting results; and 6) Consultation.
This article investigates lived experiences of participation in a training programme entitled 'Singing as a Tool for Community Building in Changing Societies', facilitated by Musicians Without ...Borders (MWB) and coordinated in partnership with the Health Research Institute PART-IM (Participatory and Arts-Based Methods for Involving Migrants in Health Research) research cluster at the University of Limerick. The aim of this qualitative study is to enhance understanding of participant experience regarding programme delivery, skill acquisition and community building. The research methodology uses an ethnographic framework. Data collection approaches included participant observation, author fieldnotes, individual semi-structured interviews, and an anonymous, post-training, feedback questionnaire. Thematic analysis of the data resulted in three key themes: the importance of expert facilitation; culturally aware contextualizing and conceptualizing of singing; and professional, whole-person support. These themes were cross-referenced against the research categories of delivery, skill and community building. The findings propose the importance of experienced, expert facilitators, contextualized understandings of diverse artistic traditions delivered by a culturally diverse team, and attention to the whole-person needs of both facilitators and participants. This research enhances understanding of participant experiences of arts-based training programmes in singing and the potential application of this learning for using singing as an arts-based research (ABR) method in migrant health research.
Aim
To determine advantages conferred by a youth‐specific transition clinic model for young adults with type 1 diabetes (T1D) at Westmead Hospital (WH) as compared with Australian registry data.
...Methods
Prospectively collected data included age, diabetes duration, visit frequency, post code, BMI, mode of insulin delivery, continuous glucose monitoring, HbA1c, albumin creatinine ratio, BP, retinopathy and diabetic ketoacidosis (DKA) for all WH T1D clinic attendees aged 16–25 between January 2017 and June 2018 (n = 269). Results were compared with data collected during the same time period from 2 separate Australian data registries, one longitudinal (Australasian Diabetes Data Network, ADDN) and one a spot survey (the Australian National Diabetes Audit, ANDA).
Results
Across the three cohorts, HbA1c was similar (respectively, WH, ADDN, ANDA; 8.7%72mmol/mol, 8.7%72mmol/mol, 8.5%69mmol/mol) and HbA1c was significantly higher in young adults <21 years (8.7–8.9%73‐75mmol/mol) as compared with ≥21 years (8.5%69mmol/mol, p < .002). In the WH cohort, median interval between visits was shorter than in ADDN (4.5 vs. 9.0 months) and DKA was lower (respectively, 3.6 and 9.2/100 patient years; p < .001).
Conclusions
While suboptimal HbA1c was recorded in all centres, the WH model of care saw increased attendance and reduced admissions with DKA as compared with other Australian adult centres.
A model of care for young people with type I diabetes as they transition to adult care was benchmarked with two separate Australian data registries. Similar glycaemic outcomes were achieved nationally but the care model achieved a marked reduction in diabetic ketoacidosis and increased clinic attendance frequency.
This arts-based and ethnographic research comprises two video submissions; ‘Elikya’ and ‘Irish World Music Café’ as well as an accompanying paper exploring the potential contribution of live musical ...performance and video recording to sustainable social integration for new migrant communities. The research is anchored in an exploration of an initiative called The Irish World Music Café in Limerick city, Ireland. The café is a community-based event promoting social singing for new migrants and Limerick residents in the heart of the city. The paper discusses the growing body of evidence concerning the role played by music (particularly singing) in supporting sustainable social integration. It also presents two video-based projects: the first captures the live performances of the café with the second focusing on Elikya, a Congolese music group associated with the café. The paper also discusses the growing importance of video documentation in supporting and disseminating live performance events such as the café. Using Turino’s categories of cultural formations and cultural cohorts (2008), it argues for the role of the café, both as a live event and a recorded phenomenon, in contributing to the development of alternative values and social change.
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