Background
The emotional state of parents of babies with Down syndrome affects their babies' development and their parent–child bonding. The aim for this study was to conduct a pilot randomised ...controlled evaluation of the effect of infant massage on parents of babies with Down syndrome.
Methods
This pilot study compared two groups (intervention and control), each with 16 parents of babies with Down syndrome. Indices of acceptance, engagement and awareness of influence were measured at two different time points (pre‐test and after 5 weeks) using the ‘This Is My Baby’ Interview. The allocation of families to each group was randomised. The experimental group performed infant massage, applied by the parents, for 5 weeks, every day for at least 10 min. The massage protocol was based on the methodology created by Vimala McClure. Parents in the control group received the intervention after completion of the study.
Results
The indices of acceptance, commitment and awareness of influence improved in the experimental group and in the control group. The 2 × 2 mixed‐model analysis of variance indicates a statistically significant group‐by‐time interaction for all indices (P < 0.001), which was significantly higher in the experimental group than in the control group.
Conclusions
The application of infant massage, by parents to their babies, improves the rates of acceptance, commitment and awareness of influence of parents of babies with Down syndrome in the short term.
To develop a Spanish version of the Rett Syndrome Motor Evaluation Scale (RESMES) for the locomotor function of Rett Syndrome (RTT) using a transcultural methodology.
The RESMES was cross-culturally ...adaptated and validated in the Spanish language (RESMES-sp). This study was divided into two well-differentiated phases: 1) a cross-cultural translation and adaptation; 2) psychometric characteristics analysis of the RESMES-sp (reliability, test-retest, construct validity, criteria validity, error measurements). For criteria validity, PAINAD questionnaire, the scoliosis values and PedsQL™, were used.
A total of 63 girls and women diagnosed with RTT participated in this validation study. The total value of the RESMES-sp correlates significantly with all its dimensions, with the correlation value oscillating between 0.645 and 0.939. The correlation value with PAINAD ranges between 0.439 and 0.805; the scoliosis values ranges between 0.245 and 0.564; with PedsQOL™ questionnaire, the correlation values range between 0.273 and 0.663 for the PedsQL™ dimensions, and between 0.447 and 0.648 for the total value of PedsQOL™ questionnaire. The reliability values of Crombach's alpha ranged between 0.897 and 0.998 for the intra-observer analyses and between 0.904 and 0.998 for the inter-observer reliability. The SEM showed a value of 2,829, while the MDC90 showed a value of 6601. The Exploratory Factor Analysis showed 6 factors and values of variance of 86.163%.
The Spanish version of the RESMES is a reliable and valid tool for the functional assessment and follow-up of patients with RTT.
•In Rett syndrome it is essential to assess locomotor impairment with appropriate tools.•As The phenotype of rett syndrome is varied, both girls and adult women have been evaluated.•The outcome from any study or research design should be measured by validated instruments.
The aim of the study was to identify and characterize outcome measures for objective and subjective assessment in persons with Rett syndrome (RS).
A systematic review was conducted consulting the ...EBSCO, Cochrane, Web of Science, Scielo, MEDLINE and PsycINFO databases for published studies describing the use of patient-reported outcome measures (PROMs) and other outcome measures in persons with RS. Validation studies and observational studies were included. The PROMs were first described, and then the measurement properties were evaluated using predefined criteria according to the COnsensus-based Standards for the selection of health Measurement Instruments (COSMIN). The outcome measures were then grouped according to the International Classification of Functioning, Disability and Health (ICF) to establish a relationship between outcome measures and ICF domains.
Twenty out of 2327 articles were appraised, and seventeen different outcome measures were identified and described. Ten outcome measures corresponded to evaluation questionnaires, while the remaining seven assessed functional outcomes: walking distance, physical activity level and ability to interact visually. A relation between these outcome measures that assess RS and the ICF allows understanding that most of the instruments (fifteen) include the assessment of activity limitations.
The findings of this study seem to be promising for their use by clinicians and researchers, although they have methodological limitations. The accuracy and quality of these individual outcome measures should continue to be assessed in an attempt to gather a consensus on the best tools used in RS.
•Most outcome measures have poor evidence of their psychometric properties and should be used with caution in Rett Syndrome.•Robust methods to obtain higher quality outcome measures should be designed and implemented for Rett Syndrome.•The benefits from any treatment should be assessed via ICF-based outcome measures.
Gamification consists of the use of games in non-playful contexts. It is widely employed in the motor rehabilitation of neurological diseases, but mainly in adult patients. The objective of this ...review was to describe the use of gamification in the rehabilitation of children and adolescents with neuromotor impairment.
We performed a systematic review of clinical trials published to date on the MEDLINE (PubMed), Scielo, SCOPUS, Dialnet, CINAHL, and PEDro databases, following the PRISMA protocol. The methodological quality of the studies identified was assessed using the PEDro scale.
From a total of 469 studies, 10 clinical trials met the inclusion criteria. We analysed the gamification systems used as part of the rehabilitation treatment of different neuromotor conditions in children and adolescents. Cerebral palsy was the most frequently studied condition (6studies), followed by developmental coordination disorder (3), and neurological impairment of balance and coordination (1).
The use of gamification in rehabilitation is helpful in the conventional treatment of neuromotor disorders in children and adolescents, with increased motivation and therapeutic adherence being the benefits with the greatest consensus among authors. While strength, balance, functional status, and coordination also appear to improve, future research should aim to determine an optimal dosage.
Gamification consists of the use of games in non-playful contexts. It is widely employed in the motor rehabilitation of neurological diseases, but mainly in adult patients. The objective of this ...review was to describe the use of gamification in the rehabilitation of children and adolescents with neuromotor impairment.
We performed a systematic review of clinical trials published to date on the MEDLINE (PubMed), Scielo, SCOPUS, Dialnet, CINAHL, and PEDro databases, following the PRISMA protocol. The methodological quality of the studies identified was assessed using the PEDro scale.
From a total of 469 studies, 11 clinical trials met the inclusion criteria. We analysed the gamification systems used as part of the rehabilitation treatment of different neuromotor conditions in children and adolescents. Cerebral palsy was the most frequently studied condition (6 studies), followed by developmental coordination disorder (3), neurological gait disorders (1), and neurological impairment of balance and coordination (1).
The use of gamification in rehabilitation is helpful in the conventional treatment of neuromotor disorders in children and adolescents, with increased motivation and therapeutic adherence being the benefits with the greatest consensus among authors. While strength, balance, functional status, and coordination also appear to improve, future research should aim to determine an optimal dosage.
La relación entre la alexitimia y la depresión y los factores sociodemográficos ha sido estudiada en personas mayores. Sin embargo, el papel atenuador del ejercicio en estas afecciones aún debe ser ...determinado. En el presente estudio se mide el grado de alexitimia y depresión en adultos mayores, comparando una muestra sedentaria con una de practicantes de actividad física. Se utilizó un diseño descriptivo transversal con una muestra compuesta por 27 participantes, 9 hombres y 18 mujeres de más de 60 años (64±5.1 años), con objeto de medir el grado de alexitimia y depresión que presentaban en el momento de la recogida de datos. Los instrumentos utilizados fueron la escala de depresión de Yesavage, la Escala de Alexitimia de Toronto (TAS-20) y el Cuestionario de Salud SF-12. Los resultados mostraron que los practicantes de actividad física presentaban puntuaciones más bajas en alexitimia y depresión que los sujetos sedentarios, sin que éstas variables estuvieran relacionadas en función del género y la edad. A tenor de los resultados, el ejercicio pudiera jugar algún papel en la modulación de las alteraciones psicológicas.
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